Hi I’m not new but find it difficult to post I don’t know why? I have MM I have had treatment , 2 SCT & I am on maintenace drug Lenodinide. This past week I have had pain in shoulder, neck & arm pain/ache & is not getting better I struggle to find a comfortable position. I have spoken to my specialist nurse who advised me to wait if possible when I go back in a week for regular checks if it gets worse see my GP. I just wanted to know if anyone else has experienced this? I also have neuropathy in hands & feet so I do experience numbness.
many thanks
Jacquie
Hi Jacquie my husband is also on maintenance with Lenalidomide he has only had a single stem cell transplant but like you suffers with shoulder and arm pains sometimes . I worried at first that maybe the maintenance had stopped working but so far his bloods are good and the pain does subside after a few days of resting it and a heat pad . I did check his original diagnosis letter and on his it does mention a lesion in T 3 although his main problems centred on L3 and 4 as is so common but that made sense of why his shoulder aches when he over stretches his arms. Good luck at your appointment next week and I hope you find something that helps with the pain .
Thank you Kent Lass for your reply. I am sure I will get support with the pain. I also have lesions in my shoulders & sternum like you I wonder if anything is on the move but at appts all is stable which is brilliant. I wish you & your husband all the best.
best wishes
Jacquie
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