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Hi everyone, I don't know if anyone can help me but I've been in remission, after my stem cell transplant, for 18 months and have been taking 10 mg Lenolidomide all that time. I have terrible neuropathy in my feet and lower legs and am used to it now...
I was diagnosed after a routine two-yearly health check at my GP, for which I must thank them. Just finished chemo, SCT and consolidation chemo over the last nine months and now ready to start a clinical trial of early-use Elranatamab. All side-effects...
Hi there, My GP has run an SPEP recently on me and the result was total globulin 34 g/l and IgA 367 mg/dl. My ESR is also high at 22. Creatinine is 90umol which again I've read is on the higher end of normal. I have read these fall within normal range...
Thanks for the positive responses I received from my last post regarding treatment for neuropathy. i have recently tried Duloxatine, my GP told me to persevere with it as she had good results with patients with diabetic neuropathy…. I experienced severe...
Hi everyone, I am not sure that I am on the correct forum, but have recently been diagnosed with MGUS. I have been unable to find a forum for the condition and wonder if others with MGUS are posting here instead? Looking for others who are in similar...
So over the last few months my light chains have been creeping up & this week I was told by my Dr I have relapsed. I have been in remission 20 months I was very stunned & upset although I knew I would relapse. My Dr said there was a trial drug that would...
Hi, My husband has been doing well post STC. But this morning he had a meeting with his consultant because they have seen spikes in his paraproteins. The specialist nurse said this could indicate the STC has failed. He has an urgent bone marrow biopsy...
Hi, My name is Debbie. I’m 55 and have been receiving treatment for myeloma since September 2021. I’m on my 5th line of treatment and now on Elranatamab. I’ve recently had a 5 week stay in hospital when first starting this new treatment as I had some...
I was diagnosed last November and it has taken me a long time to want to speak to people with the same diagnosis as me. I can’t find anyone with my exact diagnosis. Is there anyone who as what I have? I would like to speak to someone who has to ask how...
Hi, I don't really know how to use this, tried to no avail. I was diagnosed with mm, in Sept 23. I broke my back the previous Feb and was losing weight in my recovery.3 stone in a few months, my GP was at a loss. I saw a locum. Blood test on Monday...
