Hi All , diagnosed with multiple myeloma in dec 23 , had a rough year in 24 , one to forget really , after several stays in hospital with very bad reactions to maintenance treatments & chemo l had my stem cell transplant in London in June , lm part of a trial called radar which looks at how various types of treatment affect your myeloma and now on cycle 5 of maintenance but very apprehensive about the future , even though l fell wheel l do worry about what the long term affects of the treatment are and what the future hold !
Hi mandys bloke and a warm welcome to this corner of the Community although I am sorry to see you joining us..
I am Mike and I help out around our various Blood Cancer groups. I don’t have Myeloma but for some context I was diagnosed way back in 1999 at 43 with a rare rare (8 in a million) incurable type of T-Cell Lymphoma……. eventually reaching Stage 4a in late 2013 when a second, also rare fast growing type of T-Cell Lymphoma was presenting….. so although my Blood Cancer ‘type’ is different I most definitely appreciate the challenges of this journey rather well.
More so as I have had 2 Allo (donor) SCTs….. June 2014 then Oct 2015.
I see you have been interacting in some of the posts…… this will help you connect up with the other group members
The future?……. in some respects it’s all about defining what you can control at this point in time…… the health side will be what it is but you do need to aim to live that what if thoughts?…… over to a what can be? mind set.
Our 2 daughters were 14 and 18 when I was first diagnosed in 1999. But we went on to see our daughters graduate, get married, set up very successful businesses and provide us with 4 beautiful granddaughters….. I turn 70 at the end of this year and as a family we celebrated 9+ years since my last treatment.
My 25 years journey (LINK) has been challenging at times but as a family we never lost sight of the positives that are out there.
I am living a great life and we continue to look forward to what else life has in store first us to enjoy…….. this can be done.
