I was diagnosed last November and it has taken me a long time to want to speak to people with the same diagnosis as me. I can’t find anyone with my exact diagnosis. Is there anyone who as what I have? I would like to speak to someone who has to ask how they feel and what symptoms they have. Any help please.
Hi again Sanza and well done navigating across to this corner of the community.
I don’t have Myeloma but for some context I have been on my journey with 2 rare types of a on Hodgkins Lymphomas since 1999 so although my Bood Cancer ‘type’ is different I most definitely appreciate the challenges of this journey rather well.
There are a few active members at the moment so let’s look for them to pick up on your post. Do click on the main ‘Myeloma Group’ title and this will bring up all the group posts. Have a look at the posts and as always you can hit reply to any post and connect in with the wider group conversations.
For good information do check out Myeloma UK who produce very good information and run various support platforms including their Buddy Scheme, they also have a Support Line on 0800 980 3332
You may also want to check to see if you have a Maggie's Centre in your area as these folks are amazing and most centres do run monthly Heamatology Support Groups, the one I attend does have a few folks with Myeloma in it so worth checking.
Always around to help more or just to chat.
