Hi, I don't really know how to use this, tried to no avail.
I was diagnosed with mm, in Sept 23. I broke my back the previous Feb and was losing weight in my recovery.3 stone in a few months, my GP was at a loss. I saw a locum. Blood test on Monday, phone c
l Wednesday, admitted to ward on Sat morning. Since then, the usual chemo, followed by stem cell transplant last June 4th and 5th. 21 days in solitary room , which was hard. I am now slowly getting songer, but if I do too much ,I pay next few days. My wife and I want a holiday in Sept , possibly to Greece, is there a way of getting insurance where existing conditions are not covered? I hope I haven'tone this for nothing and it reaches nobody
Hi Betterdays and a warm welcome to this corner of the Community although I am sorry to see you joining us and hear about your journey.
I am Mike and I help out around our various Blood Cancer groups. I don’t have Myeloma but for some context I was diagnosed way back in 1999 at 43 with a very rare (8 in a million) incurable but treatable type T-Cell Low-Grade Non Hodgkin’s Lymphoma……. eventually reaching Stage 4a in late 2013 when a second, also rare fast growing type of T-Cell High-Grade Non Hodgkin’s Lymphoma was presenting….. so although my Blood Cancer ‘type’ is different I most definitely appreciate the challenges of this journey rather well……. More so as I have had 2 Allo (donor) Stem Cell Transplants (June 2014 then Oct 2015)….. and my recovery took a good 2 years.
A holiday sounds amazing but you may fInd it challenging getting affordable Travel Insurance as at times the price quoted could be higher than the cost of the holiday and some people do find that no Insurance is being offered.
I personally had to be 2 years in remission from my last SCT and not on any cancer related treatments for my type of incurable blood cancer before I could get any price (and that was with my consultant saying I was clear to fly a good 18 months before) but these decisions are often all down to cancer types, treatment, prognosis and the resulting risk factor put on by the insurers risk assessment - I am very open to serious infections due to a reduced immune system so this was seen as a high risk factor for insurers….. and I could never find a company that would rule out my Lymphoma until I was 5 years post treatment.
Comparison sites tend to use the same algorithms so getting a clear price can be difficult and it’s not that unusual to be turned down or told to call the insurers.
It is actually more effective to call a few insurers directly as this means that you have answered all the questions correctly and in doing this a suitable policy can be offered and price given.
Full disclosure is always advisable as in the event of you developing any issues this can reduce the risk of an insurance companies wriggling out from paying out.
Our latest insurance was through PayingTooMuch, the price was ok but I can’t comment about how good they would be in the event of a claim as we did not need to do this.
…… do have a look at the link below
Recommended travel insurance 2023-25
……… that is an ongoing discussion thread in our Travel insurance group as it's where the majority of recommendations from other forum members are.
You can also look through all the individual members of posts in the group as well.
I do hope you can get cover.
Always around to help more or just to chat.
