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Hi everyone, just wondered if any of you can help me. I have MM, had a SCT and been 18 months in remission however I have terrible neuropathy in my feet and lower legs which I think I cope ok with. That's is the only side effect I have had thru all my...
Hi all. I came onto this group 11 months ago after my diagnosis. Besides being monitored nothing much has changed. However today I am feeling very overwhelmed. Last visit to the specialist was six weeks ago. I was feeling a lot of pain. Very tired and...
Hi all,not posted for quite a while. I was told in early September that my myeloma as relapsed and I would have to start treatment again,so after some discussion with my consultant we decided on D.V.D Treatment was the best way forward for me.I have...
Hello My mother is 82 and had smouldering myeloma for 5 years which has now developed and she has been offered DRD. I am desperate for her to consider it but she’s frightened of the side effects. It’s very hard to get a sense of the side effects and...
Hi Everyone recently diagnosed 16 weeks in chemo and now starting radiotherapy for 8mm tumour in right hip.
Had my chemo just over 4 years ago, the major problem I have is with neuropathy caused by the drugs, it is an absolute pain, literally but nothing I have used is sorting it. I have tried Gabapentin, Amitryptoline and Pregabalin. Whilst they alleviate...
Hi to all just to mention I have now completed all my re vaccinations post stem cell transplant A well. Coordinated plan from stem cell transplant team and my local GP. surgery. Most grateful Hope others get the same follow ups Covid. Etc. Peace of mind...
Hi there first time posting. Got diagnosed with Lga Myeloma High Risk February 2024 and been on watch and wait. Just about getting my head around that and told its progressed so had first chemo on 15th May 2025. Have to have it weekly. Going to do 4 months...
Vespa here. AKA. Kevin. I heard from a wise advisor on here that most people post when they are in need of support or advice I just wish to reach out to Thehighlander to check everything is ok with you ? Kevin
I wanted ask people advise on working and managing myeloma and the side affects , l was diagnosed in dec 23 , I’ve had my stem cell transplant and now in remission and on cycle 8 on maintance treatment which consists on a transfusion every two weeks and...
