Hi, new here.

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Hi everyone, I am not sure that I am on the correct forum, but have recently been diagnosed with MGUS. I have been unable to find a forum for the condition and wonder if others with MGUS are posting here instead?  Looking for others who are in similar situation.

Thank you xx

  • Hi Sparky and welcome to the group. 

    Last Autumn a blood test showed raised paraproteins and my GP suspected MGUS.  I was referred to Haemotology for further tests which showed I have simmering myeloma. 


    Like you, I posted a message under this group as I couldn’t find another group which fitted and response from another group member really helped me. 

    Whilst I’m aware that my diagnosis is not the same as yours, I wondered if I could still be of help?  Please let me know  

  • Thank you. Jim 74.

     I did wonder whether there was a different group but I guess not. 

    I am having trouble getting life insurance for a house move and wondered if anyone else either MGUS had experience the same. I have just joined a support group on FB who have been very helpful though. 

    best of luck either way your journey and thank you for taking the time to respond. 

    S

  • My reply has come out there odd. I did say, good luck with your journey ( not either way)!

  • Just to say that I can't be of any help myself, but Myeloma UK has a forum similar to this one. It has a section specifically on MGUS and smouldering myeloma.

    See forum.myeloma.org.uk/.../

  • That’s very helpful. Thankyou.