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Hi, I was hoping that I could find some other ladies who have Peritoneal Mesothelioma to help support each other through this journey of ours. I was diagnosed after a 4 month nail biting wait and was totally devastated after losing my husband in 2021...
Hello, my husband has been on immunotherapy for a while,!but I have noticed at nighttime his body has started to twitch quite a bit … not sure if this is a side affect of the immunotherapy, has anyone else heard of this ? Just a bit concerned…
My husband started immunotherapy in April. It was suspended in July due to all the side effects - mouth ulcers, loss of taste, severe diarrhea, jaundice, gallstones and drug induced hepatitis. He was put on steroids due to the diarrhea. It started to...
Hi, my dad was diagnosed on 1 December. He had his lungs drained and then talc inserted and a permanent drain in January which resolved the breathlessness and tiredness. He started immunotherapy (ipi/nivo) in February and had 2.5 rounds before being admitted...
Hello there, I am reaching out to others who are supporting a loved one with Mesothelioma. I am looking after my 79 year old Uncle who was diagnosed with T3 Pleural Meso in May. Thankfully he remains symptom free although he has begun to loose weight...
Hi , I've just had this devastating diagnosis. I can't think how I came into contact with asbestos. I'm waiting for an appointment with an oncologist. Feeling so alone. Was just getting back to a way of life after caring for my husband with Motor Neurone...
Hello anyone who is out there About a month ago I went for what I thought would be a routine X ray only to discover the hospital called me back for a CT scan. My GP called me in and said its bad news you have pancreatic cancer and this has caused fluid...
Can I ask if anyone has had a positive experience with immunotherapy?. My husband is due to start soon & I can’t seem to find anything positive in respect of Meso & immunotherapy. What I would like to say to all of you who are posting about your loved...
Hi, hubby has had one cycle of immunotherapy but has really suffered with mouth ulcers and sore throat (possibly as there are some ulcers there too. He called the advice line and started using bonjela and a mouthwash. It got worse to the point that his...
My 75 year old dad was diagnosed in July last year had 10 rounds of immunotherapy after the 10th he’s become really unwell- all started with low sodium now that’s regulated he’s still so unwell so so tired and loss appetite it’s been 3 weeks now he’s...
