Hi, my dad was diagnosed on 1 December. He had his lungs drained and then talc inserted and a permanent drain in January which resolved the breathlessness and tiredness. He started immunotherapy (ipi/nivo) in February and had 2.5 rounds before being admitted to hospital for almost a month with severe annd apparently unusual side effects. Immunotherapy has been stopped. Cancer has spread to his abdomen and as of 2 July he now has ascites and does not want to have to be readmitted to hospital which he calls the hellhole to have it drained. He is preparing to die and wants the discomfort and pain to be over. I am devastated and have told him he must so what he wants but also want him to at least try a drain and see if it helps relieve the pain and he can live a bit longer. Anyone in a similar boat?
Hi Dad23 I am so sorry to read about your dad and the challenges you are all facing.
Although I do have Asbestosis my main cancer is an incredible blood cancer so I don’t have first hand experience of what your dad and the family are dealing with.
Lets see if any group member picks up on your post but you may also want to join and post in our general Carers only and Supporting someone with incurable cancer support groups where you will connect with others navigating the exact same support challenges.
