Treatment side effects

  • 4 replies
  • 10 subscribers
  • 482 views

My husband started immunotherapy in April. It was suspended in July due to all the side effects - mouth ulcers, loss of taste, severe diarrhea, jaundice, gallstones and drug induced hepatitis. He was put on steroids due to the diarrhea. It started to improve and the steroids were being reduced. He was then admitted to hospital due to severe stomach pain, which he was advised to take paracetamol for. The severe pain was due to gallstones and he was discharged after a couple of nights with continued advice to take paracetamol. He went back a few days later for a review and while waiting we were called by oncology and told to go to a&e as he needed to be admitted urgently for treatment. They didn't say what was going on at this point.

It took ages to be admitted, and then he was put on an infusion given to people when they overdose on paracetamol - which is what had happened. His liver was inflamed, he had an infection somewhere and there was talk of removing his gallbladder.

Nearly 5 weeks later, he still has jaundice and hepatitis. He has had a liver biopsy which confirmed the diagnosis of drug induced hepatitis. His bilirubin levels remain very high in spite of at least 2 different medications which should have lowered it.

He's fed up, his diabetes, which was well controlled, is now all over the place. He is partially sighted so cannot read or watch tv. All he can do is listen to the radio. He cannot walk around as his knees are agony. The only time he can leave the ward is when I visit, or when I can get someone else to visit. 

On top of this we don't know what treatment, if any, will be given to slow the mesothelioma.

  • Hi  

    It's no wonder your husband is fed up. It sounds like he's been through so much over the last few months.

    I can't help with what treatment he's likely to have, as I'm not from this group, but I noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.

    Does your husband have a CNS (cancer nurse specialist) he could talk to? They should be able to tell him what the treatment plan is or speak to the consultant to find out.

    Community Champion Badge

     "Never regret a day in your life, good days give you happiness, bad days give you experience"

  • My husband never left hospital. Nothing they tried made any difference. He died Saturday 7th October. I was with him when he took his final breath. The hospital let our lovely dog visit which was the last time my husband smiled and talked, just the day before he died. There is to be an inquest, so we do not have a final cause of death officially yet

  • I'm so sorry to read that your husband has recently passed away  but it was lovely that the hospital allowed your dog to visit as that obviously gave your husband a boost.

    There is a support group on the online community for bereaved spouses and partners which you might like to join. If so clicking on the link I've created will take you straight there.

    (((hugs)))

    Community Champion Badge

     "Never regret a day in your life, good days give you happiness, bad days give you experience"

  • Oh Nina, I am so sorry to hear the news, so sad

    i can’t image be how you must feel. 

    my husband has his 12 immunotherapy treatment today, I keep expecting something untoward to happen now I know I shouldn’t but so many doplar do seem to get side effects 

    sending you a hug Hugging