Hi , I've just had this devastating diagnosis. I can't think how I came into contact with asbestos. I'm waiting for an appointment with an oncologist. Feeling so alone. Was just getting back to a way of life after caring for my husband with Motor Neurone Disease and who died 2021. I just can't believe this is happening.
I started to feel unwell at the end of May and got blood tests that came back normal. I went private to get seen quicker for an ultrasound and results came back with fluid like a cyst in my appendix area and CT scan was advised. I was thinking, that's ok if it's a cyst. I decided again to go private as waiting times would be many weeks. The CT scan showed unusual thickening of that area and I was then sent out an appointment with NHS for discussion with consultant. At this appointment no images of my scan were available so no further forward in what it was. Had to wait until they had these. I was then referred for a PET scan and this showed up a thickened mass but also some small nodules in my abdomen. Discussion we're taking place at MDT meetings with the consultant.
Eventually received the diagnosis nearly 4 months after my first GP appt and I'm completely devastated. I'm not sure what stage this is at and will have to wait for the oncologists appointment, hopefully this week.
I've always been a very active, outgoing person. Loved running when I was younger and walking and have rescued 4 lurcher dogs along the way. Always busy. Loved gardening and helping with our local floral arrangements around the town. I now don't want to go out unless taking the dog in the car and away from busy areas so I don't have to speak to anyone.
Sorry for the negativity but I never dreamt in a million years that I would be in such a nightmare.
