Ladies who have Peritoneal Mesothelioma

Hi Siss 

I'm glad to read that your first session of immunotherapy went well and hopefully all your remaining ones will too.

I'm not a member of this group but I noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list where it'll be easier for others to spot.

While you're waiting for replies, it would be great if you could pop something about your diagnosis and treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

Thankyou Latchbrook.

Hi Siss

I thought I would reply to you although I do not myself have a diagnosis of mesothelioma my beloved husband passed away last year due to pleural mesothelioma which metastasized to his abdomen.

He worked in an asbestos factory from age 15-30. We had become aware in the mid 1980's of the dangers, he was never told about it during the time he worked with asbestos. 

I had spent a lot of time researching mesothelioma even before he was diagnosed and although it was always there in the back of our minds we were still shocked when he developed lung cancer. His mesothelioma was only fully confirmed after his death when they did a post mortem.

I am aware that I am at increased risk because I washed his clothes after we were married which were always caked in asbestos.  So I suspect you are probably correct in thinking your exposure may have been through his employment and the Asbestos dust in his clothing.

I hope your treatment is successful, Mesothelioma UK are a brilliant source of help and support, they have specialist nurses who are able to help. Also there is probably a local Asbestos Victim Support Group local to you. They were so helpful when Barry was first diagnosed helping him/us claiming benefits etc. as mesothelioma is classed as an industrial disease. None of this takes away the shock of the diagnosis but financially it was a great help to us and the support from people who KNOW about mesothelioma is so important as many people have never even heard of it. 

Best wishes Grasan

Hi! I’m new to this group so not sure how it works but I couldn’t not stop by and say hello after I read your post. I have the same diagnosis as you. I had chemo last year from July to January of this year, then had an operation and am now having immunotherapy. I know how awful it is to feel alone.. and how so very important it is to feel supported at this time, so please, if you ever need to talkI’m here

Hello PMelkan, thankyou for your reply.

I've only been diagnosed since this September. It's a big shock.

The oncologist that I spoke to said immunotherapy was the only treatment and so far my first lot hasn't given me any side effects. Hoping it will stay like that but not sure if any surgery or chemo would be available later on. 

It's a lonely road but thankyou for getting in touch.

Best wishes 

Siss

Hi Grasan, thankyou so much for your letter. I'm still feeling so devastated but also just trying to get on with my treatment. I'm due for another appt with oncologist on Tuesday then treatment on Wednesday if bloods are ok. 

I have been in touch with Action on Asbestos who were very helpful and a Solicitor taking up my case. 

Thankyou, it means a lot to know I'm not alone.

Best wishes 

Siss