My Dad was diagnosed with Epithelioid Mesothelioma about 6 months ago. They decided to start immunotherapy and he had two or three rounds then he started to have a really bad upset stomach that went on for a few weeks so they said he couldn’t have treatment...
My dad’s pleural mesothelioma was picked up very early—just a 1 cm nodule found on a routine scan because he used to smoke. At first the doctors called it a “mild” form, but the pathology soon revealed it was an aggressive subtype. We explored options...
Hi - my first time posting. I was diagnosed with pleural mesothelioma in November 2023. I was lucky and didn’t need treatment just CT scans every 3-4 months. In September 2025 I was started on immunotherapy. This helped reduce my small tumours but unfortunately...
Hi Everyone , anyone have bad depression episodes after chemo. I suffer badly from it after about 3 weeks from last chemo. How do you cope if you do?
My husband is 58 years old and has never smoked. He has had exposure to asbestos in the 80s and 90s at work. In Feb a xray picked up a lung nodule and he was sent for a CT scan which confirmed this. He had another CT scan at the end of August to see if...
Completed third cycle of immuno, Pembrolizumab, Nivolumab. Side effects have been few, but Fatigue has been one. Can spend 12+ hours regularly in bed, upto 16 at worst. Cancer nurse has said if your quality of life is too impaired, they may look at...
Hi everyone. I'm part of this forum, due to my dad sadly being diagnosed with pleural mesothelioma 2 years ago. It wasn't detected straight away.We had to wait for at least one year before the doctors confirmed that it was pleural mesothelioma. Since...
Hi Due to liver damage ( inflammation ) caused by immunotherapy and unable to correct , I am stuck on 20mg steroids and 3g of Mycophenolate ( immune system blocker ) to try and stop the immunotherapy in my system per day. So immunotherapy has been stopped...
hello all, Anybody had / knows of anyone that tried rigvir as an alternative treatment for mesothelioma sarcoma cancer? Looking into it but cannot find anyone who did try it if anyone has experiences to share, that would be great thank you ...
Hi, My Dad has been diagnosed with Epithelioid Pleurel Mesothelioma. We, as a family are devastated. Does it get any easier to cope with? Dad is going to be starting Immunotherapy soon to see if that can buy him some extra time. I've just been through...
