Hi everyone
Had a Thoracoscopy plus insertion of sterile talc 3 weeks ago and diagnosis of Pleura Mesothelioma received last week.
As most of you have probably done it was then read and research time.
Loads of similar treatments discussed but quite a variety of medical opinions as well.
I noted that various surgeries were advocated especially on sites in the US where private health care is dominant and could well be business/money driven rather than in the best interests of sufferers.
Chemo with and without surgery seems to be the main option in the UK but nearly always with the message that it is for pallitive purposes as there is no known cure yet.
Next reading was on alternative "treatment" but this was, as expected, big snake oil promises to relieve us of our money in our desparation to live as long as possible.
The only one that appealed was FICO RSO Oil which by coincidence I found out was being used by several people that my family were friends with.
I discussed it with the Lung Nurse (horrible title!) who obviously would not endorse using it but more or less agreed that it probably would not make my condition worse.
So my question is if anyone in this group has had experience with using it?
