Cancer treatment - Living with a PICC line

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Cancer treatment - Living with a PICC line

Do you have questions about living with a PICC line? The Online Community is a great place to hear from others about their experiences. You can also ask clinical questions to our Cancer Information Nurse Specialists.

In this blog, we’re highlighting conversations from the Online Community about PICC lines, and how you can take part.

Getting a PICC line fitted

For many members, the idea of having a PICC line fitted can feel worrying at first. In the Breast cancer forum, some members shared that the procedure itself was much easier than they expected.

“the insertion of the PICC was absolutely painless, in fact I did not even know the procedure had been done.”

“I was terrified of having it inserted but it didn't hurt me either.”

Another member described how the process felt straightforward, especially with support from experienced nurses.

“it was honestly okay, and the specialist nurse was so experienced that I felt quite comfortable.”

How a PICC line helps with treatment

A common theme across forums was how much easier a PICC line can make treatment.

“what a game changer, no messing around trying to find a vein”

“I was so grateful later as all the chemo and blood tests were done via the PICC line so I had no pain or discomfort.”

Getting used to daily life with a PICC line

Adjusting to daily life with a PICC line can take time. While many members found the benefits outweighed the downsides, they also shared some of the small, everyday changes that come with it.

“I don't know if I will ever get used to something dangling from my arm, but that's ok."

“Even with the annoyance of trying to shower and other minor inconveniences, still glad I opted for the PICC line.”

The animation below outlines what a PICC line is, how a PICC line is put in and what to expect during the procedure.
 

PICC line practical tips from members

Members also shared practical tips based on their own experiences.

One important tip was around dressing changes and skin care.

“make sure the skin is dry before they put the new dressing on”

This was echoed by another member who experienced irritation.

“My skin was oozing, sore and swollen… due to… moisture to the area”

Others suggested using helpful items to manage day-to-day life:

“I would recommend purchasing the waterproof arm protector for when taking showers”

Exercising with a PICC line – Tips and advice from a cancer information nurse specialist

One of our cancer information nurse specialists provided some helpful information about exercising with a PICC line.

“You can still do some exercise or physical activity if you have a PICC line. However, there are some things you will need to be aware of:

  • You need to keep your PICC line dry. Your cancer team can give you a waterproof cover to stop it from getting wet when you are having a bath or a shower. However, you should avoid swimming if you have a PICC line in. This is because of the risk of infection.
  • You should also avoid doing any activity that might dislodge the line. This includes any vigorous upper-body exercises, such as golf or tennis.
  • You can ask your cancer team about exercises you can safely do while you have a PICC line in.”

If you have a clinical question, you can post in our Ask a Nurse forum. Our Cancer Information Nurse Specialists are here to help.

Join the conversation

We’d love to hear from you. If you’d like to share your experiences living with a PICC line, feel free to leave a comment below. 

For more information, you can also visit our main website:

Kerri79
  • It’s worth mentioning that a portacath is a great alternative for those who want to continue swimming or doing more vigorous exercise. Or those who expect to be on treatment for a long time, or have young children who might pull at the PICC line. A bit more complex to fit but once it’s healed it’s fully waterproof except when docked for treatment. If you are having lengthy treatment with periods when it is not in use, it only needs flushing every 4-6 weeks. 

    I had mine fitted in 2022 when first diagnosed because I wanted to be able to swim and run, and also react to most dressings. Little did I know I was metastatic. It sits in my upper chest and I still have it some 4 years later. It has never caused me a moment’s bother. 

  • Hi ,

    Thanks so much for sharing your experience here. It’s really helpful to hear about portacaths as an alternative, especially for things like swimming and more active lifestyles. It’s great to hear how well it’s worked for you, and that you’ve had it in place for a number of years without any issues.

    We have had some members share that they were told they couldn’t have a port fitted. It’s always worth asking your medical team what options are available, as this can vary depending on individual circumstances, treatment plans, and the NHS trust you are under.

    A port can be a really good option for the reasons you’ve outlined. We’re planning to publish a blog about ports later this year, so thank you again for sharing your experience here.

    All the best,
    Dylan

  • I love my PICC line. There are some inconveniences,extra visits to hospital for flushes.

    No needles into the back of my hand.

    Chemo in to it,bloods out of it.

    The nurses should be re redressing it for you,give you a tubular  bandage making sure there's no dangling bits. 

  • Hi Den64,

    Thanks for commenting on the blog. It's great to hear that you love your PICC line and have found the few inconveniences well worth the advantages of having one installed. 

    Best wishes,
    Dylan