Do you have questions about living with a PICC line? The Online Community is a great place to hear from others about their experiences. You can also ask clinical questions to our Cancer Information Nurse Specialists.
In this blog, we’re highlighting conversations from the Online Community about PICC lines, and how you can take part.
For many members, the idea of having a PICC line fitted can feel worrying at first. In the Breast cancer forum, some members shared that the procedure itself was much easier than they expected.
“the insertion of the PICC was absolutely painless, in fact I did not even know the procedure had been done.”
“I was terrified of having it inserted but it didn't hurt me either.”
Another member described how the process felt straightforward, especially with support from experienced nurses.
“it was honestly okay, and the specialist nurse was so experienced that I felt quite comfortable.”
A common theme across forums was how much easier a PICC line can make treatment.
“what a game changer, no messing around trying to find a vein”
“I was so grateful later as all the chemo and blood tests were done via the PICC line so I had no pain or discomfort.”
Adjusting to daily life with a PICC line can take time. While many members found the benefits outweighed the downsides, they also shared some of the small, everyday changes that come with it.
“I don't know if I will ever get used to something dangling from my arm, but that's ok."
“Even with the annoyance of trying to shower and other minor inconveniences, still glad I opted for the PICC line.”
The animation below outlines what a PICC line is, how a PICC line is put in and what to expect during the procedure.
Members also shared practical tips based on their own experiences.
One important tip was around dressing changes and skin care.
“make sure the skin is dry before they put the new dressing on”
This was echoed by another member who experienced irritation.
“My skin was oozing, sore and swollen… due to… moisture to the area”
Others suggested using helpful items to manage day-to-day life:
“I would recommend purchasing the waterproof arm protector for when taking showers”
One of our cancer information nurse specialists provided some helpful information about exercising with a PICC line.
“You can still do some exercise or physical activity if you have a PICC line. However, there are some things you will need to be aware of:
If you have a clinical question, you can post in our Ask a Nurse forum. Our Cancer Information Nurse Specialists are here to help.
We’d love to hear from you. If you’d like to share your experiences living with a PICC line, you can join the new discussion thread by clicking the link below.
For more information, you can also visit our main website:
