Hi All, Just thought I'd post to see if there's anyone out there still going through the motions like myself? I think it's fair to say I was probably thought of the one who wouldn't be returning after the first time as I didn't have a neck disection...
Just filled in my biography, I mentioned a few things I hadn't previously, like potential surgery and poor differentiation so if anyone has thoughts or experiences on either I'd be happy to hear it.
well that went rather well, after a bumpy start.. PEG decided to give off a pink discharge after cleaning 1st thing.. swiftly cleaned up and loosened a tad by radiology head.. a bit of a pressure sore going on, with it being too tight..managed to get...
Hi I’ve had tongue operation back in November and RT which ended in Feb. I’ve had 1 check up with a pet scan and consultant to say all was clear this was back in June. He was a bit cross that they had not booked me in for a MRI so had to wait and have...
Hi All Im now 3 weeks post radiotherapy treatment and I think my recovery is going ok (ish). The one really frustrating problem is the fact I can't taste food. Or if I can, the taste isn't right, or it's too strong. My tongue on the tip feels as though...
Hi all i had surgery mid July to remove all my tonsils, tongue base mucosectomy and neck dissection. I have not needed CRT. there is a lot of scar tissue at the back of my throat and my speech is quite impacted - very quiet, no volume and I struggle...
Hello every one. Should I bring concerned or is this normal side effects. I suffer continuously with a dry mouth however much liquid I drink. Any advice on the best things to drink? Also in the morning I wake with very dry edges to my lips. Like chapped...
Good evening folk. Just a quick update regards my surgery. As I have mentioned in previous threads the wheels are in motion for fibula free flap surgery to harvest my fibula and use this to construct most of my lower left mandible. 1st Oct planned and...
Hello lovely people. Been getting Duraphat on GP prescription for maybe 3 years now. BoT Oropharynx, concurrent chemo radiation full gamut. Subsequent minimal saliva. You know the score. Today however my repeat request was refused. Some reference...
Well, this year has flown. It was a year on 8th September that I had a tonsillectomy and hemi thyroidectomy to remove right thyroid and cancerous nodule. In that time I have also had 6 weeks of radiotherapy and not eaten Christmas dinner, despite cooking...
