Round 3!!!

Hi Shab sorry to hear you’re back on the roller coaster 

Fingers crossed. 

Shab71 said:

Operation 2 on standby or immunotherapy if I prefer but I'm saving that as my get out of jail free card and a last resort.

Would they offer you both together? 

Hi Dani,

It hasn't been mentioned to have both together. An op is possible (deep under base of skull/jaw line). If I go for immunotherapy my understanding is it's 2yrs max. If that didn't work it's too late to operate. 

I've checked re outcomes (we get wiser) and bottom line is hindered use of tongue and swallow possibly affected. 

I've not had a choice before. 1st time around I was told neck disection wasn't an option as too complicated. 2nd time they took lymph nodes and muscle. Had frozen shoulder which after nerve twanging has resulted in a winged scapula. Now told it'll never really get better.

This one I reckon as they're tiny at the moment be best with an op. I darent risk wasting immunotherapy so soon!

What do you think? Should I be delving into more questions?  I've learnt so much so far but there's always more! I'm much better equipped than 1st time around

Ps... im still not tasting coffee like Costa Rica  it still smells horrendous. I have managed to develop a liking for la mumbas though, determination was key, shame they resemble chocolate fortisips!

Shab71 said:

What do you think?

You need to ask more questions. I know there are trials suggesting that for some cancers offering immunotherapy as a first line treatment along with surgery and RT improves outcomes. Early days though but maybe there will come a time when we see IT as routine. 
Let us know how it goes. And huge hugs. 

Shab71 said:

Ps... im still not tasting coffee like Costa Rica

Do you know the day I could was a ridiculously happy one. Simple pleasures, eh? 

I've had radio already, so that's definitely not an option. I think my consultant is really switched on as I badgered her loads about the vaccine for us finishing treatment and gene tests to see if we're likely to have reccurance. 

I'll put it to her though and see what she says. I'm under the impression it's total removal and I know in previous conversations they don't want to make you ill if they can avoid it. 

Know money comes into it somewhere... but immunotherapy is on the table, there wasn't a delay in offering it. I think this is residual rather than recurrance... so my thoughts were to save immunotherapy as a last resort.

Thanks so much... really appreciate your thoughts and support though. As ever the best around!

And I'll update... im not planning on going anywhere! X

Oh I definitely skipped on the days things tasted as intended. How you really appreciate it now. I still revel in some things...  some even muster up a bit of saliva which is novel!

Sharon bugger. Hugs I’ll text you tomorrow. We’re over in Spain. 

hazel xx