Dear all,
My brother was diagnosed with HCL under a month ago. He had 5 days of cladrabine starting on 4 November for 5 consecutive days, in the early hours of 12 November he developed a temperature, and was told to go to A&E. He was admitted on Tuesday 12th, and has been in a side/isolation room on the acute medical unit ever since (I’m writing this at 8.30pm on Monday 18 November). He still has a fever, and developed a severe whole body rash in response to one of the antibiotics they started him on. They are now onto his fourth antibiotic as none so far have been able to improve his condition/treat whatever infection he has. The rash he has might be Red Man Syndrome as one of the drugs was Vancomycin. He is really suffering. He’s also been very paranoid, had swelling of limbs, temperature of over 40, vomiting, hallucinations etc) Does anyone have any advice, suggestions, tips for him? The medical care on this particular ward is extremely variable due to that’s it’s an acute care ward e.g we haven’t seen the same doctor, consultant, nurse or care assistant twice.
Myself and my 85 year old mother have stayed with him round the clock (taking turns). We are all in quite a state, and would appreciate any advice whatsoever.
Thank you so much.
Debbi
Debbi F
