Going back into hospital for a procedure

FormerMember over 5 years ago

3 replies
44 subscribers
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So my husband has been home from hospital 2 weeks after a rather odd episode (TIA), I’m convinced it was all the worry & anxiety of being cancelled for his Liver Embolisation. We were told today a new date would be Wed next week admission 1 week, so he will be in hospital all over Easter. This is his 5th new date & I hope & pray they do not cancel him again..... planning work, juggle juggle kids half term & taking my leave to look after him (again) when he gets home.

All I do is cancel things, conferences which I love 3 cancelled, holiday to Greece family, cancelled.... holiday to a friends 50th Spain, cancelled, birthday dinner friends, cancelled endless more... feeling rather selfish but after 6 1/2 years I’m sooo tired & frustrated & can never see an end in site. Am I being selfish?

LoobyLou49 over 5 years ago

Hi and Welcome to Carers.

No, you're not being selfish. We all get bogged down sometimes. I've only been a carer for just over two years, but that's two years without a holiday, not even a weekend and driving, driving, driving, to appointments, treatment, check ups. My husband and I share a black sense of humour; it helps. One author referred to her response to being diagnosed as 'having an executioner's sense of humour'. She is a devout Christian who 'took up swearing (at her friends) for lent' as a means of handling it all. I reckon if someone like that can need such an outlet we all can feel ok with feeling totally fed up. Shout, yell, rant and rave at the wall. Mind you, I tried that one and the dog went berserk; she seemed to think I was being attacked by the wall and couldn't work out how to help. No your'e not being selfish.

Love and hugs,

LoobyLou
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FormerMember over 5 years ago in reply to LoobyLou49

Thank you for that which made me laugh, especially the dog!

you are so right driving & driving.... 6 1/2 years he’s been battling this disease.... but must carry sadly no other choice for him!

Good luck x

Needing friends over 5 years ago in reply to FormerMember

My real carer duties haven't started, reading your stories I am in awe of you all, what amazing people you are, selfish? Never, human yes. Xxx

Love is eternal

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Going back into hospital for a procedure