I need to talk

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My husband collapsed 18 months ago and was diagnosed with bowel cancer. We were told the tumour was bulky but curable with surgery. What followed was a nine hour operation to remove the tumour and four rounds of chemo. We were told then it had been successful. We had a very good few months where he was recovering well. We’d even booked a wee trip away, then came the yearly scan which showed the cancer had returned with spots on the liver and a tumour outside the bowel. He has been given 6 to 12 months and was given option to have more chemo to possibly extend his lifespan. He has opted for this and is now on Round 3. He has been so ill with the chemo he is exhausted and depressed. I can’t bear to see him suffer and wonder if it would have been better to not opt for more treatment and try and live with some quality of life for a few more months.  I want to help but he won’t talk about anything to me as he thinks he is shielding me from the saddest time but it’s the opposite. I need to talk. I’m finding it harder to get to see my friends as I don’t like leaving him. It’s a very sad limbo for us both. Is there anyone who is feeling the same. We’ve been married for 45 years and we used to do everything together and it stopped so suddenly. 

  • Hi  

    Sorry to hear about what you are going through. It is not that uncommon when sometimes people feel that sharing might be overwhelming and perhaps we did some of that in the past but we did get to a point where that was not going to work anymore. 

    Remember the helpline is there for you too if you need to talk to someone - 0808 808 0000, it is open 8am to 8pm 7 days a week.

    <<hugs>>

    Steve

    Community Champion Badge

  • Hi, I’m just catching up on this site and even though it’s a while since you posted I wanted to say I can empathise with much of what you said. I’m in a similar position and like you we have been married for over 40 years, and my husband is the love of my life. It is, as you say, very hard on both of you (and us). Every day I have to say to myself “we’re doing our best” in what is an awful situation. If it would help to chat I’m more than happy to do that. In the meantime I just wanted to reach out in the hope that maybe it makes you feel less alone in this knowing that others are in a similar situation. Sometimes that knowledge does help me a little. Sending love to you both. 

  • I am in a similar situation to you except my husband is bedbound and I have to do everything for him. It’s exhausting and I worry that it’s destroying all the love we once had. We have been married 45 years too. When he has the operation 20 months ago followed by radiotherapy and chemotherapy he was doing well. But now I think with hindsight it might have been better not to have had the treatment. He’s ended up like this with no life or future and no dignity. And I know it’s selfish but I feel desperate and trapped.

  • Just wanted to let you know how much your saying ‘we’re doing our best in an awful situation’ has really helped me this week. I’m in a similar situation (husband of 41 years who I’ve known since I was 12 has been given months to live). I think it’s a good reminder that we’re all juggling so much, anticipatory grief, supporting our partners and children, worrying about the future, exhausted etc and we can only do our best.

    Jane x