Caring for loved one at home

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Morning everyone

I’m reaching out on here because I’m feeling a little bit more anxious than normal. My situation is this. My elderly mum  has stage 4 metastatic breast cancer. She wants to die at home and not alone. We have the care package in place, district nurses, community palliative nursing team in place who visit weekly.
My anxiety is around will I have the nursing skills towards the end stage? Have other people on here managed to have professional nurses, palliative care staff in to care for loved ones right until the end? With all the cuts in services and limitations in the system, would I reach the point where, say a pain relieving injection might be overdue or breathing problems escalate very suddenly in between visits and mum suffers while waiting for the appropriate professional arrives?

I am wanting to grant my mum’s wishes but don’t know if I can do it 24/7 until the very end. I don’t know how bad things get in the end, in terms of physical deterioration or if it is possible to manage symptoms smoothly as we go along. From personal experience, has anyone on here successfully cared for a loved one until the end and the loved one not suffered as a result of not being on a ward?

  • My sister died at home bowel cancer went to her brain...palliative care nurses came every day and between her husband,me and my parents we coped.She had a catheter in when she no longer could get out of bed and we were shown how to empty it,when pills no longer helped the pain a morphine drive was used so she wasn't in pain at all.Youll be surprised at what you can do when you have to do it.My sister died peacefully surrounded by her husband,daughters ,mum and dad and me her sister.

  • Thank you for replying and sharing your experience RedTree26 it has helped me. You sound like a lovely family. Best wishes.x

  • I looked after my father at home until he died. He had metastatic prostate cancer that had spread to his bones. He was offered a place in a hospice but really wanted to stay at home. My mum had Alzheimer’s which was a factor, as a move to a hospice would have been hard for her to understand. Some family members were dubious and felt that he should be somewhere with 24/7 nursing care available, but my father’s GP was supportive of him being cared for at home. Carers came in twice a day and, for the last two weeks, he had a night-sitter as well. In the end, he just faded out, with a nurse coming in to give him morphine injections to keep the pain at bay. The GP was happy to call in if I rang the surgery with a problem, e.g. dad suffered a mild stroke a few days before he died & I didn’t know what was happening. I found caring for him manageable, though obviously very sad, and, looking back, I appreciated the opportunity to care for him at home. I don’t have any nursing experience but felt the support available was adequate in that respect. 

  • Hi Jane. I hope you are managjng as well as you ca. 

    My husband died at home as was his wish. He actually went downhill very quickly at the end. I was his sole carer with the hospice coming in 4 times a day in the last few days. He also got CHC funding right at the end and night sitters who were a godsend as he died in the night and they just took complete charge for me. 

    With support you can do it. Xx

  • Miranda t, thank you so much for sharing your experience, I really appreciate it.

  • Malengwa 

    Thank you for sharing your experience with me, it is so appreciated.