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22 days post op. 17 days home.
All going pretty well. One step forward then one step back for a week. Then two steps forward one back. Now in the land of step step step.
Stoma nurse called day 13 of post op. Now to be known as P.O. All looking good (?) red and burbling and reducing in size.
Day 14 we had call from MDT with results of biopsy of the offensive tumour formerly known as Bob.
Bob successfully removed but traces of the bad stuff found in 2 nodes. So good news dashed by the blow of having...
Ok I failed it has been a month since the last post. To be fair a week of that was spent in Sorrento, Italy with my wife and kids and we had a fantastic time. In the build up to that was more hospital visits as my wound recovered from the left groin dissection. It has healed quite nicely and best of all just before we went away I was told it was well enough to get in the pool and/or the Mediterranean on holiday and I did both. My seroma still lives with me but is not a pocket size lump which to be...
When someone dies, the opportunity for new memories dies with them. The memories that help us to remember our loved ones suddenly have to last our whole lifetime. Fear may set in - what if they fade? What if I start to forget the memories? What if, over time, they are lost? What if they simply die when I die?
Time is precious, we hear this regularly - you can't buy it, you can't save it, you can't rewind it. It carries on regardless. You are told that time heals and yet time can also...
I wish I’d never done that last post! Didn’t realise what I was going to start. My in box has been pretty busy since. I had no idea so many people wanted to be in my music blog! Unfortunately you don’t just get to be in the blog because I like you and you asked nicely. You do need to make some sort of contribution. Like recommending some songs that I might enjoy. Or reminding me of a happy memory relating to music. Or giving me the inspiration for a future blog post.
There are...
Yesterday was a good day. Drove for an hour to the motor agent for the MOT. Once home found I could climb the stairs with two cups of tea for the first time in weeks. Rested in the evening then, -BOOM! something went and I could hardly move around the house. Pain in the right buttock region.
Today not good. Struggled with the chores. Wife is in trouble with her knees and shoulder and needs my help. Her consultant rheumatologist has been NBG so far and we don't know what to do. Just made it to the...
After having a lumpectomy and having one infected lymph node out of ten, the surgical team and medical team are at disagreement over whether I should have chemotherapy. I am 50 yrs old and in the middle of the spectrum. My surgical team thinks radiotherapy and tamoxafin should do the trick but the medical team at christies think I should have chemotherapy and I have to make the decision. I don't know what to decide. Is there anyone else who has had this same dilemma and if so what did you decide...
I joined Macmillan when I had just finished my treatment for anal cancer back in 2011. I was a bit lost and didn’t know who I was and at that point whether I had a future or not. They were tracking ‘innumerable’ liver lesions, my lymph nodes and a nodule in my lung as well as the tumour site I had lost my confidence after being positive and silly throughout my treatment and was floundering out of my depth. My friends and family somehow thought great you are better now, back to normal and I wanted...
Monday 20th October my appointment, no mr Konerue so it looks like a wasted journey. Nurse offers to go and make enquiries.comes back and says, "your psa has gone down but we haven't received results of your mri scan so there is no point in the duty doctor seeing you because he cannot tell me anything" she then made a new appointment for 2nd of November its only a few days away now so no real harm done I suppose. Aint t been very good this last week overdone it with some of the jobs...
I really felt the cancer was on the march the week before the neck dissection and spent a lot of time being very anxious. I still feel nauseous everyday which is all part of it I suppose. In fact it has been a weird physical experience for me. I DO NOT have cancer and hubby does. So why do I feel sick every day, why did a huge ulcer appear on the left side of my tongue (same side as hubby's tumour!) why did I get earache at the same time and in the same place as him. Ridiculous. He found it amusing...
One thing I hadn't factored into this cancer thing was the complete absence of any time alone. Husband has worked all our married life and with him unable to work since September 10th it had never occurred to me that I would be with him every minute of the day. Hence the lack of blog posts, no time to mull over what's happening to us and no time to report it either. It's not a problem, but just an observation. I like my husband, it's good to have him around, but it's another new thing to get used...
