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Today is day 3 of the reduced dexamethasone and he is slowly slowly starting to calm down. He is still utterly confused but not so manic angry and agitated. I went to see my gp yesterday he phoned the local hospice and asked them to contact me regarding help and support so hopefully help is here at last.
There was no reasoning with my husband, I thought they had understood what I had explained about what was happening to him, but no all I could see were faces struggling not to look too pissed off as Karl raged and let no one else speak during the whole appointment. When I left the office I asked the oncologist if she found that exhausting she said yes - he had only been there 20 minutes. she said I needed to slowly reduce the dexamethasone so we could have a more productive appointment. I asked her...
Over the course of that day and the next I realised the extent of the changes in my husband. By the Monday he was exhibiting borderline psychotic behaviour. He was manic angry confused and controlling and I do not mean a little. I was in no way prepared for this. I have one question? Why didn't someone warn me of the potential side effects of a high dose of dexamethasone. On the upside trying to find out what was going on led me to this site.
Tuesday morning first appointment with the oncologist...
My husband seemed completely numb to what she had to say and was being a little strange. After the doctor left us he seemed very confused and angry and quite horrible. I figured it was understandable but I was reeling especially as I had received a text from my sister to say mum had only a couple of hours left. I went to the quiet room to had a quick cry and pull myself together, I asked to have a quick word with the nurse and told her my husband was acting very out of character. She said she wouldn...
My husband Karl was admitted to hospital after 18 months of seeing various specialists to find out why he was in pain, losing weight and vomiting. He was admitted on New Years Eve 2014. My gp called an ambulance because at this point he was very weak and the vomiting was so bad he couldn't hold anything down. About three weeks previous to this a rheumatoid consultant that we had been sent to had asked for a full body scan for him under the two week rule so we knew cancer could be a possibility...
So it's been a while since I last posted. If I am honest I think the idea of coming back to my blog seemed a little too scary. When I read my blog, I remember all the appalling feelings I had several months ago and it seems somewhat masochistic to put yourself through that. What's happened since November? Work is really busy but generally things are going well.
I'm trying to help fellow cancer people as best I can. I've supported the NHS Help with Health Costs #NHSHWHCHero campaign on their...
When somone passes away peacefully and at home. I had a visit the following day to see how I was coping.
After that day I have never recieved a call but I did recieve a sympathy card.
Has anyone had the same experience and if so would you like to share your views. I want to help those who are left behind dealing with the loss of your best friend. family. loved one.
I hope to set something up soon specially in the North East.
My first chemo session went well apart from having to have a sedative before because my BP was high. I have mastered being able to inject myself for five days, the first one it took me a good half hour to muster the courage. The first four days I was ok and carried on normally (well what is normal now) On the fifth the fatigue set in and the next day I could not get out of bed. I have never felt so low. My mouth was disgusting all dry and wrinkled inside and the taste unbearable and no amount of...
"shows us your boobs"
they shout for a laugh,
a pub crawl,
a street brawl,
not funny by half...
I'll lift off my hair
and lift up my top,
then you'll blush,
your friends hush,
'cause your joke's a flop...
I am very happy with being me, probably happier than most, but one thing that I still find hard is the get your tits out joke (and I have also been a party to other women who know I had a mastectomy joking that they flash their cleavage!). I remember a long...
I a bit confused wether to rename this blog , the confusion being is there is a suspect image in my left lung which may be cancerours or scar tissue from the operation in October,
if by a miracle it is scar tissue and i only need one final operation to my right lung then all good then the name of the blog is correct and it is a third dance with germ cell cancer,
but if its new, which is really worring ,is it a 4th dance with germ cell cancer, i hope not as this could it going to keep coming back...
