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Someone please tell me why people have to go through pain and upset!!! Y my mum? i have had enough :(
Finished chemotherapy five weeks ago and started radiotherapy this week. Was told would be only three weeks, now extended to nearly four with booster doses. Will understand more when see oncologist tomorrow. I thought radiotherapy would be easy (!) after chemo but first session felt a bit stressed, then yesterday felt like I was going to have a panic attack on the bed. Started thinking about how important it is not to move and immediately wanted to get off the bed and couldn't get the thought out...
I started my new chemo regime yesterday and it went very well. I say new, its the carbo/taxol that I have had twice before but given every week for 3 weeks instead of once every 3 weeks. The fourth week is a break from chemo (although I still have to go to the hospital to see the consultant) and then the cycle starts again. I was booked to have a pre-chemo chat beforehand, but was told I didn't need it as I am an "expert" at having chemo. I must say that on my list of "things I would like to be good...
Rang Jimmy's (St Jame's Infirmary, Leeds) yesterday and spoke to my (future) surgeon's secretary to see if there's any news of my impending SNB, WLE. Pleased to say I'm in the system, and will hopefully get a date by the end of this week. I do occasionally wonder if the passage of time increases the risk, but mostly I'm fine, except I'd like to get this next thing done and dusted. The only thing I can compare it with is standing on the end of a platform waiting for a late train with no indication...
Are there any survivors of duodenal cancer? Please, share with us your experience as a patient or carer...
Hi,
Iam 21 years old and my mum got digonised with Lukema 2 years ago. At the time she got digonised my nan (my mums,mum) died of lung cancer. It was such a hard time in my life. Mum has a bone maror transplant and it didnt work so she had to have a top up. Now 2 years on she is still fiting that CMV virus! she got told about 1 month ago there is a infection in the brain, we had to go through so much. it kills me seeing the people i love so upset and in so much pain! I just dont know what too do...
Well ive not been right for a few days ,very tearful ,up and down like a yo yo, i even cried myself to sleep one night ,and i havent done that since ju first died ,
I hate being like this as im such a happy positive person ,even though i know its "normal" lol me normal ! but i now realise why ive been so unsettled ,
Well another nightmare shift today, my legs is still painful and swollen so i was struggling (bloody horsefly ) , then a collegue thought i was going to do all her work for...
My son is starting to really notice how dad is going down hill, 3 weeks ago dad and mum were still picking him up from school, now he spends all day laying down - sometimes asleep sometimes awake. I heard him talking to his little sister last night - he'd been sick the night before and she asked him if she was getting better like guggy "guggy's not getting better" came the reply.
I was so shocked then I just cried - I really am going to have to tell them, I know everyone says be honest...
Off to Northampton General for the first time tomorrow for planning in advance of radiotherapy starting in just under three weeks time. I think it should all be straight forward: CT scan (no barium this time I'm told!), and marker tattoos to help make sure I am in the same position each time I'm zapped for the radiotherapy.
B will be going with me, even though I said I wasn't sure if he'd find himself twiddling his thumbs and I could probably manage. Actually it will be good to have...
