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  • nanaboo's blog
    Home Again
    Alan and i have had a good 3 days away . He coped ok with the driving took regular breaks and a short kip when needed. It was good to get to see my mum and she was so pleased to see Alan.My brother picked us from the Red Jet and drove us to where ever was needed, had a meal with him and his wife before taking us back to Cowes to get the boat back to Southampton. Tomorrow its back to the hospital for his next dose of chemo. And into the old routine again. See u in the chat room soon. Better go...
    Former Member
  • BrambleDigger's blog
    Tis the night before Opening, and all through the house.............
    Hi Folks, It’s me again! Well no, that’s not quite right, is it? It’s always been me – never been anyone else. So, I suppose, it cannot be me again, can it? At the third stroke, the time from BT will be………….. So – here I am, sitting in front of this wretched machine – we’ve all got one and love or hate them to a greater or lesser extent – but still we use them and still we moan about them. Especially the updates – Oh dear me, especially the updates. Have you tried to install the latest one from...
    Former Member
  • pompei's blog
    Long time for bad news
    Hi everybody, I have been following all of your posts while awaiting the outcome of my husband's biopsy. Today, after waiting over 5 weeks, we finally heard the worst. After the first diagnosis in Spain in March when the Cancer was in the bladder only, today we were told that it had spread through the muscle to prostate and lymph nodes. We now have to wait a further 2 weeks to find what the Medical Team in Liverpool, our nearest Cancer Hospital, can do. Our local consultant said that there are only...
    Former Member
  • beanpole's blog
    visit to Oncologist
    went to see oncologist yesterday Clives swallowing is bad again. Soup only and yoghurt drinks, also a few aches and pains on breastbone/ shoulder blade. He had a barium swallow to see how things were flowing when swallowing, there is a narrowing but oncologist wants to still go ahead with Third taxotere round then scan and get straight on to radiotherapy for 2 weeks, which he says should help the swallowing. So we'll keep on pureeing for the next few weeks, great! He finds it quite depressing not...
    Former Member
  • Davis3595's blog
    Alex
    Pulmonary Epithelioid Hemangioendothelioma - EHE My name is Alex and I have just been diagnosed with EHE. The local hospital is unable to help me, indeed most of them had never heard of the condition, and I have been referred to Christies Hospital in Manchester. I have looked at several websites and to be honest most of them are written in medical jargon and very low on how EHE is caught, treated or of survival rates. I would be delighted if anyone with EHE, or know of family / friends suffering...
    Former Member
  • Jillyanna's blog
    Pain in the a***
    Hi just thought as i hadn't posted anything recently, tell you that after my recent episode of 'hypertensive crises' i have a new and annoying pain in my but (literaly) feels like i'm sitting on a square cube, saw my onc today, hes not happy about this and also got this numb feeling and tingling around my but cheek, also got the urge to do a wee but not a lot happens, how annoying is that!! Anyway got another mri tomoro, looking at my pelvis! I will let you know the results if you are interested...
    Former Member
  • nanaboo's blog
    Advice needed Now
    My husband has hodgkin Lyphoma ,i am due to go see my mum on Sat.Shes 95 and has breast cancer have not seen her for 6mths . He now wants to drive me there .Its a long drive amd a long day .He gets tierd and i am worried it will be too much . What do other thnk of this? .i know they say if u feel like it do it . Any help advice please post . Nanaboo
    Former Member
  • Noj's blog
    The first FEC
    The day finally dawned when I was to have my first chemo!!!! Oh the excitement of it! Emmet, our youngest, was really playing up this morning and leading up to saying he didn't want to go to school. We managed to jolly him out of it - which was great because it meant that Brendan could stay at my appointment with me. Half way to the hospital we got a call from the school saying Emmet needed his asthma inhallers and didn't seem to have them with him..... so Brendan dropped me off and headed home...
    Former Member
  • HippyJo's blog
    Thank you everyone
    Hi Everyone and thank you all for your messages of support. John still being sick and feel at my wits end - think I will just find a field somewhere and scream out loud as I am screaming in my head at the moment. Medical team in community have been absolutely fab and doing everything they can to help John. Am just worried about dehydration as this will mean John will have to be admitted and he absolutely does not want to go in, stubborn bugger! Anyone out there have any remedies for the sickness...
    Former Member
  • deejay's blog
    shaky start this morning - bit better now
    Had a very shaky start to the day this morning. Had only been up for about half an hour when the tears came and wouldn't stop. Cried solidly for about an hour. But feel a bit better now. Really touched by some of the comments after my rant yesterday. And everyone was so right in what they said about people's support. I definitely think that going through bereavement, illness, hard times in whatever shape or form makes you a more compassionate, courageous person. Far too many people to thank all...
    Former Member
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