Pulmonary Epithelioid Hemangioendothelioma - EHE
My name is Alex and I have just been diagnosed with EHE. The local hospital is unable to help me, indeed most of them had never heard of the condition, and I have been referred to Christies Hospital in Manchester.
I have looked at several websites and to be honest most of them are written in medical jargon and very low on how EHE is caught, treated or of survival rates…