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My husband had a radical nephrectomy for cancer on September the
14th. When we went back for the results, the hospital said the cancer was at
intermediate/high risk of returning but that he may be eligible for
participation in the SORCE drugs trial, taking Sorafenib or a placebo for up to
three years.
To our delight, he was accepted onto the trial and we were told he would then have a PET scan and further tests before beginning to take the tablets. (Back in October, I remember
reading online, the actual...
It’s the end of term. I have been back at work for a whole term and managed whooo hoooooo! I am still only part time but didn’t think I would manage to last the course so am very happy and very very tired!) We had a Christmas concert pageant/festival thingy at school. Two performances as we can’t fit all the parents in the hall at once. Music teacher asked me if I would sing the alto part to Silent Night.. Yeah ok says Little My, not realising that he meant on my own and not with everyone else!!...
This college has wonderful online e-cards this is my way of saying Merry Christmas.................
ASHLAND COLLEGE<-------------------
I been having some twitching in my legs over the last couple of months.... I honestly thought it was the tumor in my lung pressing on a nerve or something.....but my oncologist arranged for a MRI scan which I had on Monday......course it wasn't the lung tumor.... there's a 2cm lesion on the left side of my brain...which is affecting the right side of my body..!!
And whilst they were having a look around....they found small lesions in my vertebre.....I asked them not to bother looking, but...
I'll never figure this site out!
Right - scan results today, everything below the lungs is 'stable'. A couple of lymph nodes near the lungs are swollen, and there's loads more 'dots' in the lungs. Not good in itself but the 'dots' are millimetres in size.
Doc. is putting me forward for phase 1 trials, don't know how long that takes, and depends if they want me and if I want it when I've spoken to them. Won't be until after Christmas anyway. If that doesn't go ahead...
Into the hospital early this morning for baseline functions - hearing test was good so starting from a strong base, and the lung function is strong after years of cycling and rowing, They found a bed in the ward for me at noon, just in time for lunch :-) After that I'm on 2 bags of hydration (6 hours in total) to be followed by 2 bags of chemo later tonight, and then back onto hydration. Hopefully that means I'll sleep through much of it, having taken the anti-emetic. I didn't get too much sleep...
With the Oxyplatin being reduced from 230 to 170 because of the concern over the possibility of vertigo causing central nervous system damage, I must admit it has left me feeling a lot less tired and slightly more energetic that the first. I stopped taking the cyclizine last Friday, to be able to assess, if possible whether it IS directly related to the chemo, or just a coincidental additional problem. I still cannot sleep horizontally, so spend all night propped up with a large amount of pillows...
The hospital rang the day after clinic to say that the consultant would ideally like to start the injections asap but that my husband could choose whether to wait till after Christmas. We discussed this together and he wanted to start straight away. Quite honestly he has been so poorly it is probably for the best. We will be having a nice family day this Sunday when our grandson is coming up from London with his mum and we will open presents, so treatment will start at 10 am on Monday morning. We...
Well after working on Macmillan's triathlon programme for the past eighteen months I felt it was about time I compete in a full one myself. I have competed in teams before, completed half marathons and cycling events but like many the swimming aspect of a triathlon, which hasn't neccessarily put me off, but it hasn't encouraged me to enter either. It's quite ridiculously really as I can swim albeit not very well. Lack of technique leaves me exhausted after two lengths of pool let alone having to...
