What a bloody week it's been........

1 minute read time.

FormerMember

16 Dec 2011

I been having some twitching in my legs over the last couple of months.... I honestly thought it was the tumor in my lung pressing on a nerve or something.....but my oncologist arranged for a MRI scan which I had on Monday......course it wasn't the lung tumor.... there's a 2cm lesion on the left side of my brain...which is affecting the right side of my body..!!

And whilst they were having a look around....they found small lesions in my vertebre.....I asked them not to bother looking, but that's doctors for you....they have to have the last word...!!

Went for a lung biopsy on Tuesday, which was painful but glad i could have it because they can now compare the sample to my previous one 3 years ago and check its still the same cancer type...

But once again....couldn't just leave it at that....'' while you're here Jackie, we'll drain your lung and you can stay for a couple of days....'' lovely for me, I got a really nice rest.....and pretty spaced out on morphine....!!!

Home now and preparing for next week....not christmas I'm afraid...my family are seeing to that..( which should be fun)...I'm usually really particular when it comes to decorations etc..a bit like Monica off Friends...my two teenage sons will be doing it all this weekend...I will be patient and smiley..!!

I'm preparing for Stereotactic Radiation Therapy sometimes called the cyberknife or X-knife...!! They're going to blast the legion on my brain all in one shot......

So my final words on this blog have to be........MAY THE FORCE BE WITH YOU.........!!!!

FormerMember over 13 years ago

Hey there Chansey! Thank you for the friend request. It took me a bit to figure out how to accept it but I finally figured it out! lol So sorry to hear about the tumor on your brain. I hope & pray everything turns out well. We just have to keep the faith & stay as positive as possible.

I read your other entries today. It really saddened me to hear about your husband leaving like that. But I guess that is one more thing that proves we are stronger than men! lol I don't know what I would do if my husband left me. To be honest I have thought several times of leaving myself. I don't know if I can handle putting my husband & kids through watching me get sick, that is if I do get sick. So far so good. It will be 2 years in March 2012 since my diagnosis.I wish I knew what my future is going to be like with this disease. My PA told me that of all the cancers out there, if he had to choose one for himself he would choose the type I have.

I'm not sure if I read your blog right or not, but did you say your oncologist gave you 1 to 2 years? I sure hope not. The hospital I go to the doctors never say anything like that. What they do say is that we don't have an expiration date stamped on us anywhere. So how would any doctor know when we will go? As far as I am concerned God is the only one who knows the answer to that. So keep your chin up lady. I know it is hard at times, especially when it comes to our kids.
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FormerMember over 13 years ago

hi chansey, firstly really sorry to hear about the lesion, as if the lung tumour isn't enough. i'm in the same boat they have just found my small brain tumour too! (i'm 18 months down the line from finishing surgery plus treatmewnt for nsclc) i'm also waiting news of this gamma knife treatment but beacause i live in oxfordshire the pct have to be asked to fund it ...... (a scarey thought) fingers crossed then for the both of us. i am now going to decorate my mobile home ready for xmas, the thought of leaving that to the ol man leaves similar horrors!

love and hugs sue xx
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FormerMember over 13 years ago

hiya everyone... hope you are feeling ok

hi sue..I haven't got much info about the brain one yet...I was going to have a look at side effects and stuff like that after the radio therapy surgery. I do like to be realistic and I have started to get my 'house in order'...

Yeah, my oncologist gave me 1 to 3 years...but they're just numbers aren't they....!!

are you in any of the groups on here....I'm collecting quite a few now and thinking of joining the brain tumor group so I could maybe get more info....

enjoy your decorating....don't let men anywhere near tinsel and baubels....makes them silly...!!!

best wishes jackie xx
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FormerMember over 13 years ago

Hi Jackie, I've heard of Cyberknife, possibly off here. I believe it is very accurate. Fingers crossed and everything. Sorry I've only just seen this.

I've given my tree away this year (seeing as I'm not supposed to be around next), I couldn't be bothered putting it up and I gave it to school where I clean and ended up putting it up in Year 2's classroom!
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FormerMember over 13 years ago

hiya lesley, I did a bit more reading up last night about this radio therapy, there are side effects but supposedly mild and the need for it does outweight so I'm feeling a little better about it.

That's a lovely place to put your christmas tree...try and stay with your job for as long as you can....kids are great...especially when they're not your own and you don't have to take them home...!!!

best wishes lesley, love from jackie xx
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