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19/33 Tuesday 22 April: Weight 74.7 kilos. Had my usual weekly chat with Mitch. Told her about my niece’s new baby and my daughter expecting one in August. See, it’s not all about me. Everything ok with me, as far as I am concerned, although the tiredness each day when I get home is getting to me a little. No other major side effects except realising that, when I need to empty my bowels, I mustn’t delay. Also, I have found myself suddenly leaking into my tissue pad, without warning. A bit longer...
Just a short update today, as I'm not feeling too great. Had my 4th of 5 Mytomycin shots on Thursday, and started the 7th of 8 cycles of Capecitabine. My bloods must be fine, though I forgot to ask for the exact levels. The registrar I saw (yet another new one) said that I should have a scan after the last cycle of Cap and possibly before the last Myto. If the scan result is good, I may not even need that Myto. Timing is pretty tight though: I'm not sure when they are going to schedule the scan...
Well that didnt go to well on thursday i got a call from one of my consultants they had found the source for my afp rise i was informed it was a small nodule on my lung and it would just need surgery to remove it. Job done. Relief.for the first time in a year my wife and i thought this nightmare would be over. Just a ct scan to confirm it was ok to operate. So yesterday i had my scan and for the first time i waited with confidence.how wrong was I In walked my cinsultant.sorry but the scan show four...
My last post was end of 2013 and i promised me and any followers i would be more regular and i have not....sorry. This is therefore mammoth...sorry.
So where am I? Well it moves fast this disease so here goes...
At end of 2013 i was on my clinical trial at the excellent Sir Bobby Robson Unit (SRBU) at the Freeman hospital, Newcastle Upon Tyne with a paclitaxel (a type of chemotherapy) and mek inhibitor (a trial drug from Glaxo Smith Kline or GSK) combo designed to try and turn off the signals that...
Just a little update as to how I am doing since ending RT last Thursday (today is Friday) .....
At the beginning of this week I was having fatigue bouts but as of yesterday these seem to have subsided. I would say that I am functioning at 50-60% of my regular activity levels because I am not getting up early or doing school runs at either end of the school day. Also, I am not doing very much in the day and I am falling asleep by 10pm whereas before I was working (yes, maybe 4 hours per day only...
March 18, 2014 I went to the Emergency Room with an ear ache I could not get resolved with antibiotics. They put me on stronger antibiotics. Suddenly, I am having severe breathing issues. I cannot swallow food without choking. I thought perhaps it was an allergic reaction to the new never had before antibiotic. The ER told me I had bronchitis. I go to my doctors office for a refill on my nebulizer medications to see if I can get some relief for extreme breathing issues and she has me stay in office...
There have been so many times I have wanted to write more about my husband's cancer experience but things change almost on a daily basis post treatment and it's difficult to comprehend one state before moving onto another. It's all logged in my brain somewhere - hopefully, although much of the onslaught I wish to forget.
September 2013 saw us being collected by the laundry machine of the wonderful NHS and told we needed to be washed and treated for throat cancer. That time seems light...
