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I am losing my patience now, THREE TIMES i have started this blog, and
Three times it has clicked off, now i can hardly remember the gist of what i
was saying in the first place, so i will try one last time for those who wanted
an update on my hubby.He went to see the consultant at the hospital today,
after he had checked him over and then looked at his ex-rays he said the injection he was going to give him in his hip bone would not be helpful
regarding the pain he was having. What was needed...
I am very new to this so excuse me if I babble, according to the information pages I use a blog like my diary, well here goes and I hope if anyone out there does do me the honour of reading my thoughts and feelings that you will allow me to tell you about how I got here.
In the year 2000 I buried my Mother, the same week I took my youngest daughter who was then 13 to have some tests done on her kidneys,which showed some scarring but nothing to worry about, she was put on antibiotics for 6 months...
Hi Mummy
I know I havnt written to you for ages, but Baz has had the lap top at work so I havnt been able to get on for a while. He is this really funny rota at the moment. He has 2 days on, then 2 days off, then 2 days on and 4 days off.
Not much has happened since I last wrote to you, we are up in Ipswich at the moment visiting everyone. We mainly came up because Marcus is being bullied at school and Kelly wanted us to come up. So up we came. He seems fine though, laughing and mucking around...
well folks its being nearly 5 weeks at work now , dosnt time fly when your enjoying yourself , like it does not ... no chemo this week i can have a rest .yipeeeee lol ... next week go for a check up and week after i have to have a ct scan my belly has gone hard doc`s wont say what they are thinking it is so i will keep my fingers crossed you all take care out there xxx
Well thank goodness it was not C- Diff again. However, he does have an infection in his line. He ate something today for the first time in 4 days but his temp spiked again just before I left, so more blood for culture.
We were just talking tonight and realised that he has spent 9 of the past 13 months in isolation in the hospital, He said he know the cows in the field by name now !! His blood counts are still at zero but apparently the Drs are not too concerned about this, Had some more platelets...
Have been for my pre chemo assesssment today. Asked me if I wanted to start this Wednesday? Hell Yeah!!!!!
Had an ECG, (with unshaved legs, whoops!!) and bloods taken. I have the most fantastic veins so hopefully getting the poison into me won't be a problem.
Lots of information to take in at once, took my sister with me as I would rather have her come and digest the information with me than my hubby, (straight in one ear and out the other.) Warned about lots of side affects, which am told...
I can't believe it's only a month since the fateful ultrasound scan - our lives have changed so much.
We have just completed chemo round one of a twelve week cycle.
Pain seems to be more under control at the moment and side effects from the chemo seem to be tiredness and nausea. We are hoping to be able to get out and about in the next few days.
On the positive side, we have an appointment to give notice to marry on Thursday, and we are doing a lot of frank and honest talking. I am so...
I do wonder whether I will be of any use here. My experience of Cancer is simply living with it smouldering in the background for a known ten years. Though it is likely I had CLL long before the diagnosis. I have no idea of what stage I am in. My last Consultant said. I should consider my blood counts as normal for me! It seems to do little.has infriltrated my spine, but again! Little awareness of its presence. My prognosis is that I will probably die with rather than from it, so it is between CLL...
We dinally have biopsy results and not good. Hubby has sstage 4 unknown primary but spread to other organs, inlcluding (just found out today - lungs and bones) liver, lymph nodes. He has spent the better part of the last three weeks in hospital for various reasons, was supposed to get out yesterday to celebrate Canadian Thanksgiving with his visiting family but ended up in intensive care with a respirator. This is so hard to deal with and has happened so quickly.
He is retaining fluids very badly...
