Actinic Keratosis

2 minute read time.

By this time I was intrigued to see what else the bots wanted to help me with, so I had a browse through some of the information they'd sent me.

What about my diagnosis of actinic keratosis? AK to those in the know, but not to me. I still couldn't pronounce it but that didn't matter. It wasn't cancer, and that did matter.

Unfortunately it didn't take me long to spot another take on this. It wasn't cancer, but it wasn't too far from it because there was apparently a 'very small' risk it could progress into that thing I'd noticed in the second nurse's notes. Equally unpronounceable to me at the time, it was called squamous cell carcinoma and the first nurse's referral had been made on the pathway of that name.

That sounded to me like cancer. It even came with its own medical acronym of SCC. I was getting the hang of this jargon pretty quickly. I'd even managed to work out the pathway in question wasn't something to walk along while you admire the view. At the same time, it was important to me that I didn't become too familiar with it because I didn't want it to take over my life. I didn't want to know too much about it and I definitely didn't want to talk its talk.

These areas of sun damage on my scalp continued to perplex me. All the information I'd been sent or accessed via the links from the bots made something very clear to me. Aside from hereditary factors and skin type, my lifestyle was mainly to blame. Somehow or other it was my fault. Not all of it, but most of it.

Of all the misconceptions I've personally experienced, this is probably the most common. It's my fault.

Doubtless with the best of intentions, I've received all sorts of unsolicited advice to use sun cream and avoid the midday sun and so on and so forth. In response I silently scream I've always done this and, yes, I've also avoided the sun whenever I could. But I know I'm on a loser. The prospect of a nice sunny day being something to fear is beyond most people's comprehension.

Prior to the bots contacting me, I used to volunteer at a large country park. I did some patrolling and a bit of litter picking and enjoyed the social contact that went with it. But that all had to stop when I was given the diagnosis. As I parted company with the friends I met there I told them I was going to train to be a vampire (to be clear, as in avoiding daylight, not biting necks). But I recently came across a better description of the same reclusive process when I heard about a GP advising someone to "live the life of a cave dweller". That's exactly what I'd chosen to do and I still do it.

So, I knew what was wrong with me. I also knew how important it was to stop it in its tracks. Okay, so the chances of it becoming cancerous were so slim that I might as well ignore that possibility. After all, I've never bought a lottery ticket and expected to win, but I still wanted to get the treatment right.

And that's where Efudix comes into this story.

Trixie26
  • It's hard being told to keep out of the sun. Wish I could joke about it too but I feel it makes me socially isolated, so I'm not being as good as I should. I look forward to hearing more of your story.

  • Hi, and thanks for your comment that's so understandable and relevant. I hope you're doing okay. Warm wishes.

  • Hello dolphin99

    I thought I had been keeping up but haven't. I only saw you had put up 2 more new posts this morning. It did sadden me to read you had to give up your volunteering and make a retreat from the day light world.

    Also really want you to know that my lack of comments and likes are not down to disinterest.

  • Hello Rowan.

    The timing of my posts is a story in itself. I think the site date stamps a draft when it starts, and that date stays with the post forever (today's posts were written on different days). Very confusing. But I'm new to this and my learning curve is steep.

    Recently I've been considering disabling the comments because I think the commenting system can inadvertently create expectations that commenting needs to be 'kept up' so to speak. That's not how I see it. Particularly on this site, I think there are times when we can manage and others when we can't. So please let me reassure you about that.

    Also, at the moment I'm playing catch up. My posts will slow down at the end of next week, when they move into real time and become less frequent as my deadline of results day approaches.

    If you ever felt like exchanging occasional private messages, as and when you feel up to it, please don't hesitate to send me a friend request. I've only ever done this once (in order to answer a specific question) and found it very convenient:

     https://community.macmillan.org.uk/a/help-pages/c/private-messages-and-friends/HP13/how-do-i-send-a-private-message

    Take care, I hope you get some sleep and all the best.

  • Ah, that makes sense of my time stamps now. Thank you so much for letting me know about how you are thinking of posting. I have been looking out for you and would like to keep up with your blog.I will send a friend request and follow the link you have given

    The wait is not easy, so am sending some solidarity  to you for that.

    Take good care yourself, all the best and thank you again.