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My husband is having a really rough time with his chemo for T cell Lymohoma...he's had 5 out of 6 CHOP cycles...since day 1 he has had the most debilitating cough, he cant talk, eat or drink without having coughing fits, he's exhausted...the drs keep treating him for a gastric reflux cough but he hasnt had any obvious signs of this and no-one has checked his ;lungs.... not one thing has worked to ease his cough....has anyone else had this problem ?? His quality of life is appalling....
Dec 2009 – July 2012
A big Hi to everyone out there old and new with very best wishes sent out to you all.
I had a quick recap of my blogging on here and was first amazed to see my first blog was December 2009, where I was feeling my way round the site and asking for advice about my upcoming surgery. I found support and friendship when times were very unsure indeed.
I would never have believed that when joining as a patient I would be searching support and advice as a carer to my dear...
So Monday was spent all day preparing for and travelling to a court hearing that happened Tuesday. That's all a long story in itself, but boiled down it is extra stress that's just added to the already tangible strain on the family. John's parents looked after the little ones, with help from second-oldest daughter. The trip was a long one and it definitely took its toll on John. Monday night we met with an old friend of mine, who I never get to see anymore. We both enjoyed a nice dinner...
Ok, right, so my training blog hasn't actually been very active since my first entry six months ago (!!) however I can assure you I have been active - rowing , cycling and a spot of running. However specific training for triathlon in two months (!!!!) has not really materialised. So here's what I need to do:
Get some swim practice in. I have now downloaded my local pool timetable which means I will train and I have Googled where I can do some outdoor swimming to try out my wetsuit. I just...
Now, here's the thing:
I feel good. I am healthy. I can do my placement (which is physically quite demanding) without any problems whatsoever.
The SNB came back all clear.
So why why why would I now go and make myself potentially really ill with chemo and rads and hormones AND herceptin. Usually I'd say 'if it ain't broke, don't fix it...'
Big sigh.
hi my dad was diagnosed with an inoperable brain tumour in march this year.
he has had 6 weeks radio theropy and sailed through it . He then had a seizure a few weeks after completion of the theropy and has never recovered .
he is confused and very unsteady on his feet. my mum looks after him and asstsis him with dressing himself . but she has been diagnosed with cancer of the womb and has to have a hystorectomy and will be off her feet for weeks .
im worried about the care that will be given...
News report
In the 1st round of the heavyweight fight between Brooksie from Scotland in the blue corner (feel free to cheer and clap) and Larry from Sh**sville in the red corner (boo and hiss as much as you can), the judges have unamimously decided it was a victory for Larry.
In a press conference after the BumCam, Brooksie said:
"Yeah he got me with a sucker punch, I didn't see the wee b*****d coming at all"
He went on to say "I'm building myself up now for round 2 at the CT scan...
Ok. I have mentioned this before and those of you who know me have said wisely, Let it Go. It won't help, it will slow your recovery from grief, it will cause more pain.
But I have been thinking and I have to do this. I have to get these questions out of me so that in 2 years or 3/4/5 years I am not left thinking, "I wish I'd asked that."
I think my questions will not give me any answers. They will not tell me what I want to hear. They will not alter the outcome - my man is dead...
Thank goodness for lazy Sunday. Even with the new knowledge this morning that yet another family member is plagued with something horrible, I feel easier today. Maybe it's my refusal to do any housework; maybe my refusal to get dressed properly; or maybe the kids' enjoyment of the weekly "American Pancakes" mornings and virtually unlimited access to various video games. Whatever it is, it's a well-needed mental break that makes it easier to cope with the seemingly endless worries and frets and...
The last few days have been full of ups and downs, though many more downs than ups. Not sure if its normal, but have been having mainly morbid thoughts. Probably quite irrational. I tend to be quite organised so I checked with my solicitor to make sure he still had copies of my will. I then made a list of all my bank accounts, where the money was, life insurance reference numbers, pension reference numbers etc and how many death certificates my wife should get in case the worst happens. I even made...
