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Hello,
So second post, its been a while since my last one. They've stopped all chemo treatment with mum and we know we don't have long. She's in hospital and I guess the realisation that this is going to be slow and painful is a tough one to bear. You prepare and try and prevent the final outcome and in the end it doesn't just happen as you expected. Its all been very emotional but I haven't really been doing anything just sitting around. As a result I have a lot pent up energy and frustration that...
Hi everyone,
I've put some answers to the questions below.
Please let me know if they are useful and if you have any other questions.
By ollie1
Hi
I have lung mets speckled on both lungs from bowel cancer, I have just finished 12 sessions of chemo and the mets are the same so am having a 3 month break.
I am interested to see if you know much about having the mets lasered, I know there is a dr in London who uses a fairly new machine to do this. Do you know many people who have had...
Getting a macmillan nurse, joining websites that help, seeing a therapist that specialises in Cancer.
Choosing your own hospital one thats best for your care package. Joining a singing group, dance group knitting group. somewhere to giggle inbetween the tears.
Please bear with me people - - this "Blog" thing is totally alien to me, but I have been writing a "Diary" of my experience with Chemotherapy, and sending it to everybody I know on the Internet. I thought I might also share it with Macmillan.
My intention - - to spread the word that Cancer and Chemo are not to be taken lightly, and talking about it is better than keeping quiet about it.
I had been sailing in the Merchant Navy for over 40 years, and knew absolutely NOTHING about...
It's 3 months since my lovely man died. Sometimes, it feels like yesterday & at other times, it feels like ages. The emotions swirl around and I switch from sadness to anger to guilt to misery. Some of the really gut-wrenching crucifying eviscerating pain has deadened but it wouldn't surprise me if it came swirling back like a whirling dervish and smacked me in the guts.
I know he is dead. I've visited his grave often enough, but still the tricksy little brain says, 'Perhaps he's gone...
A diagnosis of sorts, and a prognosis. Rather quickly after my PET scan on Friday, the liaison nurse phoned with a summary of the findings (we said it was OK to talk about it over the phone).
It's ain't good. Although it's still unclear where the cancer started - there's no major primary tumour they can see - it has spread to a number of my chest and neck lymph nodes. To summarise: it's looking strongly like 'CUP' (Cancer of Unknown Primary), which is bad news. It's difficult to target chemotherapy...
Theres one thing i hate - well theres quite a few things, but the number one thing is blood tests. Only my left hand side allowed for the blood letting and i have one vein thats ok (in my hand) and another that plays ball very occasionally.
BUT i am a grown-up and so off i go taking a book as the waiting time can be horrendous. 'shall i come in?' asks hubby who doesnt understand my hatred of phlebotomy! HA no way (said it a bit nicer than that - just!). in and out in ten minutes, lovely...
My daughter had her 6 month "watch and wait" appointment this morning. She was diagnosed just over a year ago. First appointment was 4 months, then they let her go 6 months so she was back this morning. Her bloods haven't changed - good sign - but she has lost a further 11 lbs from last time and her spleen is slightly more enlarged. She has to go back in another 4 months for a CT scan of her spleen and they may treat it with radiotherapy. Her consultant is pleased that her bloods are staying steady...
So far so good. Chemo started yesterday and apart from them having trouble with my veins (they didn't want to play) all was ok. Glad I'll have a portacath by the next lot.
Felt a bit sick in the night, but nothing I couldn't cope with. Hope it stays that way!
So the past few weeks have been hectic and eventful.
So many extraneous things going on in the family, i.e., legal issues with visitation for ex's parents with the children; family visiting from Los Angeles; new splint issues for poor little Emmie, which included having to buy a pushchair on the spot ona day out because she could tolerate the splint; school starting soon and school clothes/shoes shopping. Then, there are the people I love overseas who are struggling and could greatly use my help...
