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Have stupidly left this to after I started round 2 so need to put myself back into “Recovery Zone” mode…where I was very positive and happily thinking, “This isn’t so bad, I’m one of the lucky ones, if it’s like this the whole way through I will be fine!”
Perhaps it is like giving birth where you seem to forget about how traumatic it all is fairly quickly!
But actually, thinking back, round 1 really wasn’t anywhere near as bad as I thought it would...
Tuesday 27th December 2016
Ok, I'm going to be brutally honest about Christmas this year because I would dearly like to be able to look back next year and realise how far things have come. It's so easy to say that Christmas was lovely to everyone who asks, and it truly was, but there were a lot of other things going on in my head while the 'lovely' was going on, things that I kept to myself, it was very difficult and I'm trying to be honest in this blog. So I'll start from Saturday, and Saturday...
So two days later. Christmas done, emotions dealt recycling bins filled.
What's left I find myself thinking?
Hmm answers on a postcard please to: London W1A 4WW.
I guess I need to set some new targets. OK obviously. New Year 1st. Daughter s 18th on February would be wonderful
Treatment in a bit of limbo at the moment. However someone must be planning something as they called and a sled me in for a scan next week. So guessing oncologist will want to see Mr the following...
Well scan results followed by a biopsy confirmed recurrence stage ii Hodgkin's.
I have started my treatment GDP (gemcitrabine, dexamethasone, cisplatin). It all started a bit hectic tests to see if my body still worked normally kidneys, lungs, heart.
Insertion of a Hickman line, which they make sound so simple, local anaesthetic and then you are hidden whilst people talk about what they are doing, just making a small cut in your neck, now threading the wire down your vein, once all...
Don't know if a blog? Is the right thing to do but I had 7 teeth extracted with a local anesthetic on Friday. All the back ones. And ever since I have been in complete agony on the bottom right hand side.I have only been able to eat one chocolate since having it done and I am struggling to do anything include sleep. I have tree all sorts of pain relief and the only thing that half works is my Short tech which I am down to 13 of and won't get any till Wednesday. I am being refused more unless its...
I thought I'd start a blog to stop me cluttering up Incurables with too many threads as my mind spews out bullshit at a remarkably fast rate.
Mixed emotions this morning, still haven't figured them out myself. The words "No you definately won't see Christmas" have rung through my head on an hourly basis since my Oncologist muttered them to me four days before my 55th birthday in late August.
I don't claim to have fought cancer. I haven't even really got into the whole thing...
Friday 23 December.
Two blogs in one day, because today has felt like two days, but I am home, with my wonderful husband and little dogs, I am so relieved to be at home.
It was a long morning, more intro antibiotics at 6am, blood tests and blood pressure, temperature. The blood pressure was slightly low but nothing to worry about the nurse said, but as soon as she said that my mind went into overdrive, I convinced myself I would be staying in for Christmas. I really need to stop overthinking...
So today was my appointment with the consultant clinical oncologist; who will be organising my chemoradiation. I was feeling very relieved to finally have this appointment as I felt that it marked the end of diagnostics and the beginning of treatment; my move from contemplation to action and the start of my journey to kicking cancers butt. However I came away feeling deflated, more waiting for appointments for more tests and uncertainties as to where my treatment may be.
The team, who included...
So I had my PET-CT results and my examination under anaesthesia today.
The latter involved leaving home at 6am, hungry, thirsty and looking awful (no make-up is not a good look on me) in order to have a general anaesthetic (sooo pleased it was a general as I needed a good sleep). Whilst under general my consultant checked my cervix, bladder and bowel for any signs of the cancer having spread.
I am so relieved to say that all results were as positive as I could have hoped for; yes I still have...
