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• To Hop-on or Hop-off is the question?

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• Today my coffee tastes like Christmas in Costa Rica

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• One Step At A Time

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• Community News

  This is a place where you can read about everything that's happening on Macmillan's Community. From guest stories, to sharing awareness months, here is where you'll hear about all of the latest from Macmillan's Community.

  Dylan - Online Community Team 4 days ago
• WJ grade 3 Astrocytoma cdkn 2a/b non-deleted

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• Multiple Myeloma

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• Mumofcancer

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• Cycle 19 and not working anymore

  Emotions 23 days ago

Latest blog posts

• New Haw Saint Bladder Cancer journey

  DAY OF OPERATION (18 June 2020)

  Still extremely tired and sore, but want to put a few things down in the coming days. Remember this is hopefully going to be of use to a future patient. Spoke to surgeons and anaesthetists on Monday June 15th 2020 about 8:00. Also saw Stoma nurse who...

  Chasam over 5 years ago
• New Haw Saint Bladder Cancer journey

  IN RECOVERY (17 June 2020)

  That was tough. I can’t pretend otherwise. Monday 15th June knocked me for 6.Operation was somewhere between 8 and 10 hours. I do have a Neobladder so no stoma and bag, ICU after op and all day yesterday yesterday. In ward now absolutely shatte...

  Chasam over 5 years ago
• New Haw Saint Bladder Cancer journey

  NEO DAY -1 (14 June 2020)

  Mission accomplished yesterday, with a helping hand from my work colleagues who sent me some beer. It’s like going on holiday, just not looking forward to next week as much as I did Italy last year. Talking of holidays, me and 18 year old steps...

  Chasam over 5 years ago
• New Haw Saint Bladder Cancer journey

  NEO DAY -3 (12 June 2020)

  In case you were wondering what all the “wife’ references are about rather than using her name, well it’s because we wanted this to be pretty anonymous. Obviously you all know who she is, but my plan at the end of all this is to put...

  Chasam over 5 years ago
• New Haw Saint Bladder Cancer journey

  NEO DAY -4 (11 June 2020)

  As the title of this blog entry suggests, I had some good news for a change. My surgeon called me today with news that biopsies taken on Monday were all good. The ureters are good. The prostate is good. No bad surprises. Which means I am suitable for...

  Chasam over 5 years ago
• New Haw Saint Bladder Cancer journey

  FEELING SORRY FOR MYSELF (10 June 2020)

  Before I start my daily updates, I want to note that I’ve had 2 days so far where I’ve felt sorry for myself. The first was the day I got my results from the first rigid cystoscopy. When the surgeon told me it was muscle invading bladder ...

  Chasam over 5 years ago
• New Haw Saint Bladder Cancer journey

  RIGID CYSTOSCOPY #2 (9 June 2020)

  I have had more hospital appointments in the last 8 weeks than in my previous 52 years 40 weeks. And last Saturday I had my first Covid 19 test, which did make my eyes water I must say. (It’s the nose swab..jeez) That was prep for another rigid...

  Chasam over 5 years ago
• New Haw Saint Bladder Cancer journey

  FIRST TRIP TO CHARING CROSS ( 9 June 2020)

  My local hospital were great, as was my GP beforehand. In fact if it weren’t for their swiftness and refusal to go for the easy option of waiting to see how it panned out, who knows what the outcome would be. So, thanks NHS. And yes, me and wif...

  Chasam over 5 years ago
• New Haw Saint Bladder Cancer journey

  IS IT IN MY CHEST? (9 June 2020)

  So a few days after the news of cancer in bladder and Radical Cystectomy (RC), I get a call from urologist saying that I need a CT scan of my chest. I’m thinking this is to make sure I’m fit enough for a big operation. But no, it’s ...

  Chasam over 5 years ago
• New Haw Saint Bladder Cancer journey

  HOW DID IT COME TO THIS? (7 June 2020)

  A little bit of blood in my pee 8 weeks ago and being a man I ignored it. A week later another bit of blood so told wife who made me contact my GP, even though we’re in Covid lockdown. Blood tests,urine test all ok (or not as it turns out) so C...

  Chasam over 5 years ago