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Hope this link works, there are some good ideas in this presentation. I like the idea of fixing a break at a specific time, perhaps just for half an hour everyday. i think that could work. There is a good section about 'guilt' which resonated with me. I feel guilty about enjoying myself...
How can this happen? This wasnt supposed to happen, I wasnt told it COULD happen?
The January check up was fine, bloods all normal CA125 10 and C9-19 10 also. My GP had asked me to mention that my ESR (Rheumy blood) had risen again, this was dismissed by my Oncologist.
I was due my next check up in May........May came and no word from the hospital, so I rang, to be told I was on a "Waiting list" for a review appointment. I kept ringing for a week and eventually got an appointment for the 15th...
I have had a horrendous night last night. Really unsettled.
Dad starts his chemo on Tuesday and I have had all these thoughts going round all night. Although the nurses were great last week and showed us the chemo suite and stuff like that. I have no idea of what really is going to happen and also what the aftershock might be like. I am worried that I won't be able to give Dad the support that he needs.
Here is the journey so far.
I have found in dealing with things in other areas of my life a journal or blog has really helped so I hope you indulge me doing one about this. I will try to be as open and honest as I can not only about the medical side but also my emotional journey as I support my Dad through this. Easter 2010 - My Dad went into hospital as an emergency due to how bad his breathing was. He had nearly 4 litres of fluid drained which they took biopsies from but nothing came back conclusive...
I lost my Dad to cancer on 14th June 2010 and laid him to rest on 29th June 2010.
Feeling very down and can't stop thinking about my Dad. I don't know what to do with my days anymore. Everyday seems to be neverending, just feel so helpless and frustrated
a close friend of mine has sent me an email to say he thinks his cryo has failed!
He was diagnosed 10 years ago and had RT but last year his PSA started rising so they offered him RP but he chose to go private and have Cryo they told him at the time he could not have RP after Cryo, so he is now contemplating a second go at Cryo but is worried OF COURSE about damage to other organs.
Anyone here has any experience or advice on Cryo?
we can surf the net but patient experience is golden
Boys together...
Well after being told that Mum's tumour had grown and was infiltrating the liver wall, we have now been told that it looks like abcesses and that the liver resection will go ahead as planned.
Mum is going into hospital on Monday to have the blood supply to the right hand side of her liver stopped which will then regenerate the left hand side to allow the major op in August. She has been told to go on the planned family holiday to Portugal on 20th July.... a bit worried but obviously great news...
The second the word Cancer is mention it is amazing what it dose to you, your family, your friends, work colleagues and people around you. All people react in different ways some become very quite, some overprotective, some will hide their heads in the ground, others go into a worldwind of needing to know every in and out, some even roll over and start putting nails in coffins, me personally feel that fighting is a very good way ahead this is not a new thing and things are...
Ho hum, another day with no call from the hospital. Waiting for a WAE and SNB appointment. The protocol says they've got 15 days, and Jimmy's clinic says I'm to ring and chivvy them (Jimmy's) on Monday(after 7 days), but it's a bit tedious. Had to chivvy them to get my first appt too - amazingly, after I did I got a call back after only ten minutes. What a coincidence :0). Oh well, patience is its own reward - what does that mean?
Hi everyone thankyou so much for the nice messages :) xxx
I got my results for the 3 tumours, I am all clear for now... Have to go back for an MRI in November and see the Surgeon for results on them in December. I think its too see if they have come back I'm not sure but I got diagnosed with Ganglioglioma Grade 1. I'm not sure what that is either so I think I have to see a GP to discuss it. If anyone knows, please do say as I tried googling it, but I'm not to good understanding scientific words :...
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