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Hello Multiple Myeloma Members! I'm still getting myself used to this new site and all its quirks, good and bad. I have enabled some new features on the Myeloma, Let's Talk! Group site. You can now blog here directly if you would like. I have also made a few of the "old timers" Managers, like on our old group site, so that I'm not the only one in charge of the group and approving membership. I noticed the other day, someone asked to join and when I looked at their profile, there...
I have taken a drive down Paranoia Street and found a nice big parking space on Nervous Avenue, results from my lumpectomy are due tomorrow and I can feel that horrible dread I felt last week waiting for the biopsy results. It hasnt helped that I saw a few of my notes on computer screen and one subject was do not delay diagnosis (what is that all about) but that note wa made before I had my op so trying not to run too far up neurosis road with that one.
Thought it would be a good idea to try and...
My mom was diagnosed with oesophagus cancer and after a meeting with a surgeon has been told that he cannot operate because it has spread to her liver and will have to receive chemo and will either have a couple of months or years if the chemo works
The hardest part is having to tell her grandchildren (my kids) that nan is really ill, my eldest cried the youngest sat their and hardly said anythink.
It was such a huge blow my heads all over the place and trying to be strong for my mom and dad and...
Hi All
Sorry been so long since i updated with what was happening.
But this litle story will explain ..
After having the usual 6 rounds of R-Chop for Non Hodgkins Lymphoma part of my tumour was still there in my chest, so approx four weeks ago i was admitted to hospital to have a week long high dose chemotherapy session called R-ICE.
After having the break from all the chemo i had i was just starting to feel a bit "normal" again until i was admitted!
Something set me off and i could...
Well there I was yesterday wondering why I was taking time off work when I'm perfectly fine and then today bumph - can't stop crying. My brother and my sister both have lung cancer and it looks as though my brother may not have much time left - everything is going wrong now. He's been fighting like hell for 3.5 years having been given 6 months and I admire him so much but the b***ard thing is crucifying him. I'm so angry, just really really angry.
I am so tired again, all I can think about is climbing back into bed. I am sore and uncomfortable, or am I simply just feeling sorry for myself. I just can't pick myself up and am feeling pretty lonely as there is no one to hold me close and tell me it's gonna be okay...
I presume I am not the only one who has followed by the book the instructions given by nurse, radiographers etc etc that the only think I can use on the aread of my skin being treated with radiotherapy is BABY SOAP & AQUEOUS CREAM!. not baby bath or similar - just pure baby soap in a bar. No Deoderant, no body lotion etc etc.
I suffer from a skin condition and have steroid creams in varying strengths to use on my skin, particularly under my arms (which is one of the areas being treated.) Consequently...
Sorry crap line from the Lion King that keeps creeping into life.
Did I mention that he probably has brain mets? that he has had a minor stroke? That the house is a tip, that I am trying so hard to hold it together and failing badly????
I was doing OK but am having a crap evenign (probably due to the near bottle of wine I have drunk)
Feeling shit, feeling scared and angry again. What is it with the anger? I could rip people's head off when they try to be kind and do the "I know"
...They have found out that Berts infection is coming from his hickman line so it was removed rather swiftly as apparently the infection is a particularly difficult one to erradicate. Fingers crossed now that the line is out the infection will move. Bert looks really tired and is still confused quite a bit. ( He thinks we went out on the bus with the nurse on Sunday). But he needs another 2 units of blood tonight as his Hb is only 7.1 so hopefully he will have some couolour in his cheeks tomorrow
...Oh lordy me. First day back at work since mums diagnosis. I had a week off to kinda come to terms (as much as you can) with whats inevitable. Been a tough week as I'm sure you all have experienced in your own way ; so in a way I was kinda glad to get back to work.
Aye, right. That lasted about 10 seconds. Usual crap, pretty much from the outset, only difference is that I seem to have lost my ability to put on a face and just let it slide passed without letting it get to me. Suddenly all the nonsense...
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