boosmum's blog

  • No brain mets, just multiple mets everywhere else in only 9 weeks!!!!

    FormerMember
    FormerMember

    OK folks, not sure where I got to lasttime but we went to Guy's for the results today.  It wasn't brain mets, but something caused the stroke, possibly at surgery, but he is already getting more movement back.  On the less than positive note the CT scan showed mets that were too many to count in his abdomen.  There are 3 main ones of 4cm, 2.5cm and .8cm and a shotgun style scattering of mets accross his whole abdo…

  • all the way to the birdy boiler...

    FormerMember
    FormerMember

    Sorry crap line from the Lion King that keeps creeping into life.

    Did I mention that he probably has brain mets?  that he has had a minor stroke? That the house is a tip, that I am trying so hard to hold it together and failing badly????

    I was doing OK but am having a crap evenign (probably due to the near bottle of wine I have drunk)

    Feeling shit, feeling scared and angry again.  What is it with the anger?  I could rip…

  • Twists and turns

    FormerMember
    FormerMember

    Well originally I was going to write this every day, but life overtook me a bit.

    Son's 18th went well but rather quietly.  Blew money on a big LCD TV for him which I can't afford but what the ****.

    Onc phoned on Saturday in a rather late response to the email I sent asking questions because we had been given no one to ask anything of. 

    The wonderful onc nurse at Frimley had already arranged for husband to be…

  • Today he went to the DR's!!! whooo hooo!!!

    FormerMember
    FormerMember

    Well he went to the dr's in the end.  Not his GP but a locum.  Says the pain/non movement of foot is probably muscular but has ordered a bone scan anyway.  He also prescribed the painkillers my husband had a massive allergic reaction to in hospital!!!

    Husband is grumpy and miserable, but I think it is just being in limbo that is doing it really.

    His KC is a particulary rare type of RCC with sarcomatoid and rhabdoid…

  • Boosmum's kidney cancer blog - God I could scream!!!

    FormerMember
    FormerMember

    OK first time blogging so I'm not sure what I am doing.

    God I could scream just about sums it up.  I am fed up with his cancer! 

    I am worried and scared.

    Came home from work this evening and he calmly informs me that he can't move his left foot properly.  He sat on the sofa and sort of pulled his toes towards him, the right ones moved a good couple of inches, but the left ones moved maybe a cm.  He then informs…