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Tomorrow Mick (hubby) starts his "pallative" chemo. We are so unsure what to expect regards side effects, but then so is everyone in this position. I know he is concerned because the information given says that it can cause breathlessness - when he is so breathless to start with. He is also keeping a lot to himself, I know he doesn't want to worry me, but it still doesn't stop me having sleepless nights.
The weather isn't helping - it rained all day yesterday so we were virtually...
Hello to all you wonderful people. This is my first blog, yep I have been a member of this fab website for over a year now, I was diagnosed finally with AML January 09, at the local hospital A+E as I was dying, my GP failed to do anything about my illness for 3 visits, and eventually my partner..god love him grabbed me out of bed and dragged my sorry bones to the hospital for help. I was admitted straight away with ridiculous blood results, given a bone marrow test and then sent by ambulance to the...
What a rollercoaster...I have held on for a Phase 3 trial that is taking place at Addenbrookes Hospital, Cambridge and it's been the ultimate heartache and despair just getting on to start with. To give it the official title "BRIM 3: A Randomized, Open-Label, Controlled, Multicenter, Phase III Study in previously untreated patients with unresectable Stage IIIC or Stage IV Melanoma with V600E BRAF Mutation Receiving RO5185426 or Decarbazine"
Once I found out that I had the BRAF Mutated...
So as not to bore you rigid, I will break up my journey with nsclc into what I hope is manageable chunks. But it could turn into War & Peace hahaha,
We start with the journey up to the commencement of treatment.
The story starts on 4 September 2009......
During that day a very strange thing started to happen, I began to sound more and more like Marge Simpson with a sore throat lol. Must be the onset of laryngitis I thought, which turned out to be naively optimistic on my part.
After 2 weeks...
Well, This Is It .. I don't know why I have been chosen to take a journey I have no wish to go on - BUT this journey is here for a Reason? Be it for me or for someone else. Is it a punishment? I don't know! Is it as a reason for something that happened in my past? A beastly side effect for all of the experimentations of having IVF x 6 tries - IVF was full of Hormonal starts/Hormonal stops and other awful drugs which pushed my body to the limit and sadly for me, it never did result in my having...
After the anxiety of this morning with my partner having a fever again, I am relieved to say that he has started the new chemo: Clofarabine (I think), usually for children with refractory (e.g. relapsed) leukaemia that has become drug resistant. He is also changing pain relief but said he can't tell any difference at the moment, except that the newer one tastes vile!
While I accept that it may not work, I am just glad he was well enough to start it. His mum and younger sister are visiting him...
well its been 7 months (I've had to count this in my fingers) since Steve died and the tears have now subsided or so I thought. Last night I had a parking problem and tonight i've been watching tonights the night. Well both have reduced me to tears but I turned the TV over and now I'm watching Mama mia while if I go outside I can hear the outside JLS concert at Escot. Pierce Brosmans singing or lack of it brings a smile to my face and through this sadness life goes on.
Stacey
Well, it is now 4 weeks since my last chemo, so I am offically in remission. We have been going away on the 2nd week after chemo, as soon as I was feeling fit enough,and coming back in time for bloods and my next lot ot treatment. We stayed away longer this time, and I came back feeling better, and didn't have to go to the hospital, so now I've got to find something to fill the time when I'm well. I actually went out gardening with my husband properly today, instead of watching him and...
How on earth do i get through the next 2 days we have been so busy in the week since dad went to sleep but i really don't want monday to arrive, i know i am going to be a mess. Worst of all i have got to get through 'Race for life' tomorrow. I say 'got to' because i promised my dad i would and he wanted me to. I dont think my legs will work. 
Had a lovely birthday this week, went off to St. Thomas' for my first meeting about my RT. The staff were lovely and the first nurse took my head and shoulders photo for my file and asked me loads of questions including was I pregnant (ha ha ha!!) said I, she said they had to ask all women aged 12 - 55 the same question!!!!!! I then sat in the waiting room and a young lad who looked about 12 called my name and off I went like a lamb with him to the CT room. Fortunately there were two other people...
