After the anxiety of this morning with my partner having a fever again, I am relieved to say that he has started the new chemo: Clofarabine (I think), usually for children with refractory (e.g. relapsed) leukaemia that has become drug resistant. He is also changing pain relief but said he can't tell any difference at the moment, except that the newer one tastes vile!
While I accept that it may not work, I am just glad he was well enough to start it. His mum and younger sister are visiting him tomorrow and I've bought him some posh writing paper and envelopes for his last letters. This is a very depressing aspect of the stage we have got to, however at the same time I'm getting a copy of his Decree Absolute as we are going to try to get married after 17 years, health permitting... Que Sera Sera!
Finding that obtaining Mortgage Interest Relief is a major chore. You fill forms out in great detail and then they ask for the detail again. Today I've been asked to provide details on a loan that was taken out 15 years ago and paid off. Hopefully I've still got the paid off in full letter somewhere, businesses don't have to keep records for as long as that! It is a major stress for me at the moment.
On Monday, I start a new job (sort of) as I'm working on a Casual Relief Basis, the new employer has been brilliant but it wasn't good to be asked to start on the first day of the summer hols, 2 days before the end of term, childcare was pretty much booked up by then. Am hoping (crossing everything) that my partner will be OK so I can just get my foot in the door as it were.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007