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well - i have mds for about 2 years now - felling low this week and fatigue has started setting in
i would really appreciate talking with people who have mds - low ipss score but think that will change shortly...
many questions.....
thanks in advance Mark
This week David has constipation.
I appreciate that it is painful, I have suffered from it myself. But I had to get on with everything as normal, cooking, cleaning and looking after the kids.
David on the other hand, has taken to bed.Groaning about how bad his stomache ache is and not helping himself to get better. He dosen't want to eat or drink because that means moving and pain and nausea.
He woke me around 4am on Tuesday morning and was actually being sick mainly bringing up liquid. He...
So we have been fairly busy over the last few weeks.
We have had a trip to Diggerland, Monkeyworld and have had a Day out with Thomas at the Watercress Line Steam railway.
David enjoyed watching the children enjoying themselves, and even managed to partake in as much as possible and enjoy the days out too.
We have just 2 weeks left, the kids are starting to get on my nerves now that the trips out are starting to reduce so that I can get things organised to go back to school. Why oh why can't they...
my husband johns cancer diary
april 1st rushed into pinderfields hosp needing 7 units of blood after a blood test after being to docs with blood in his urine
april 5th had cystoscopy and a growth removed from his bladder
may 10th had ct scan at ddh
may 25th diagnosed with invasive bladder cancer and they also thought it had spread to his lungs
june 10th lung biopsy at DDH
june 22 appt with lung doctor at DDH
june 30th PETscan at jimmys
july 13th appt at PINDERFIELD with urologist will order...
it was my birthday today,,putting all the crap stuff aside it turned out to be a very nice day , lots of cards , prezzies and cake, lots of visitors, all our family dropping by and best of all my darling hubby having a pain free and settled day,, even though i know he won't be about for next years one, today shall be a day i will always treasure and never forget....now looking forward to our son's wedding on the 31st and a house full of people,, that'll be paper plates all round as i've no intention...
Well firstly hello to all out there that take the time to read this.
Got to say in the past 2 weeks I have been spending alot of time looking at things on the internet in the hope of finding information and answers - what have I learned well firstly there is alot out there, it doesn't often reassure you, but knowledge is power. Oh and to take the time to absorb and get over the initial shock coz that is the real kicker!!!
2 weeks ago we got the bombshell that mum wasn't suffering from a severe...
I am a blog virgin, anyway here goes.
My dad goes for biopsies and drainage of pleural fluid on Monday. Our jorney is just beginning
Well today has been spent packing to go away to give my daughter a bit of time with me and my son a bit of time to do normal 17yr old things, thankfully he is a sensible lad whom has given me so much love and support over the past weeks but I know he needs a bit of time for his own emotions. My daughter 11yrs is struggling with the loss so some time to sit on the beach sand in the sandwiches will help us both talk about her feelings in neutral grounds.
Although I know going away for the weekend...
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