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Hello everyone I have just been diagnosed with prostate cancer with a Gleason scale of 7 and a
PSA of 25.
I have had a MRI scan, a bone scan which shows a hot spot on my rib, so I have had to have a CAT scan and a PET scan (I am still waiting on the results of the PET scan) its nice to be here with you all on this roller coaster of a ride. My results will determine my treatment in the new year I will keep you all posted.
Merry Christmas to all of you.
Feel lost alone but have daughter 5 mins away another 45 mins away eldest passed away August bank holiday moved house new area now this wife has brain lung cancer not long there said months been 7weeks now can't talk to daughters as will upset them plus there to are finding it hard to cope so don't really won't to bother them with my feelings don't know what to do in this new house alone
Saturday 17 December.
I didn't do my blog yesterday because I didn't do anything to write about. I just sat and knitted most of the day, and tried hard to be lazy because I want those white cells to start reproducing! I felt very fed up though for most of the day. The disappointment of the postponed chemo was upsetting. The lovely neighbours called around to cut the wig they'd given me in the evening and I'd made some more mince pies as a thank you for them to take home. That was it, my Friday...
Hi ladies. Came home from hospital this afternoon. I had my hysterectomy on Tuesday morning. As a precaution I was transferred to ITU for the night and then back to ward. I could not believe how little pain I was in and just had paracetamol. Had more discomfort after visit to dentists! Now have to wait for results which might be here next week. Had visit from my Macmillan nurse too. She has been wonderful and so supportive. I just hope that it's good news, but taking each day as it comes. To any...
Well, here I am. Sitting in my kitchen with a cup of tea. It’s cold, grey and misty outside which is a strangely comforting reflection of my mood. I’m peering through the haze, trying to make sense of the vaguely deformed shapes looming out there. Like trying to make sense of the shadowy grey thoughts flitting through my mind.
I’ve decided I’m going to get some of the noise in my head down on paper. There is so much of it that it feels like birds trying to get out, fluttering...
We had such good Christmas’ when my sister and I were kids, the lounge would be full of presents and my mum would be more excited than us watching us open them. The house would smell of Christmas cooking whilst Emily and I would play with our new toys, or try on our new clothes. Mum always had more presents than us, she was a mobile hairdresser and had tonnes of clients who would shower her with beautiful gifts. It hurts to buy presents knowing that she’s not on my list to buy for this year. I dread...
Just thought it was worth popping back here with a quick update.
So I'm now onto 3 monthly checkups. I've got this small patch of osteoradionecrosis by where the end tooth is. It's on the inside of my jaw. Fortunately the tongue on the that of my mouth is partly arm, so it's can't feel the patch. That would be really annoying!
All my scars have healed up pretty well. I'm even wearing my watch over the flap scar now.
I went on the radio the other day to talk about H&N cancer...
Thursday 15th December
What a rubbish day today has been, and rubbish is putting it politely.
I got a phone call at 7.45pm last night to say that they couldn't process my blood test because the nurse who came out hadn't labelled the samples so they'd arranged for more bloods to be taken this morning, so I was up early, showered and tidied around and waited, and waited, at 12.10pm I phoned the chemo unit to tell them nobody had called yet and they said they'd chase it up. Half an hour later...
Mum has had a syringe driver and catheter fitted in the last day. She is sleeping most of the time.
I'm terrified. I'm terrified of being the only one here when she takes her last breath... I've never seen anyone die before.
I'm scared that she's in pain but unable to speak so can't have it fixed. I'm scared that she's scared....
I don't really know what to do with myself....
I learned how to crochet because she told me she never had a blanket made for her...
Wednesday 14 December
Today has been much like yesterday really, except that I had the blood sample taken ready for chemo on Friday, and some eyelashes came out this morning. I think that bothers me more than the hair going. The district nurse who called today was so lovely and kept asking me how I was, and how I was coping, but it was easier with the other nurse who called last week, she just took the blood and disappeared, she was very nice too but efficient. I find it difficult to be normal...
