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Ok - first day no steroids - not too tired so far - been singing 90 mins at charity do - so expecting some tiredness. Napped pre lunch over Observer
Biotene a saliva miracle has done well to sort out dry mouth and give food some flavour and help appetite
Bowels working daily with help of Lacido once a day pm
Hoping Monday is not a downer
Hi Everyone , I first posted a blog back in December 2016 thought I would update you if that's ok . Well I've now finished 6 months of FEC and 3 weeks of radiotherapy I count myself lucky in a way because I only had a what I feel is a short course of treatment I had a couple of hospital stays 1 was in February with a chest infection and the other was in March when I had what I can only describe as an odd experience !! I had just finished my evening meal with my family when the room started to spin...
tired today after day at work - ditto for yesterday. Interesting to see how Sunday works being first day with no steroids. Bowels working ok with movicol - still a slight strain - but at least things are moving
Finding it challenging to swallow down 95mg of steroids in form of 7 tablets plus iron tab plus the stomach protector plus the lysin thing to ensure waste flushed through kidneys
On the whole still positive and not too much impacted by all the medd
Hope the lymphoma is decreasing...
I am starting radiotherapy tomorrow & have read conflicting views on using creams. Some say use nothing unless problems start, others say use cream before & during radiotherapy. If I use creams hat do I use? Really difficult to know what to do.
Even having had ulcerative colitis for a number of years, I'd never spent as much time in hospitals as I was about to. The results from the biopsies were the beginning of making my local hospital, and further down the line other hospitals, my second home.
I visited the hospital the day after Dr Chopra called me, just so she could speak to my wife and I face-to-face and hand me over to the oncology department. It's the first time I've seen my wife cry, it was heartbreaking. It became even...
I want to preface anything I write in this blog with a caveat; everyone's different, everyone's diagnosis is different, everyone's treatment plan is different and everyone's reaction to diagnosis and treatment is different. This is merely my story.
It's partly written for my own selfish needs of wanting to get certain things off my chest, but perhaps it might help people to look at their path in a different light, or maybe people can just mutter under their breath about how irrelevant...
Ok - dear wife drove with me to hospital and stayed all day - always good as she asks all the awkward questions
Sonia our nurse was excellent in explaining how the day would pan out and all the components of the treatment
She took her time to decide on my best vein (must be good as no bruising today) and hooked it all up. The retuximab took hours as it goes in so slowly so as not to cause problems- gradually speeded up - must have taken 4 hours? But no problems at all. She put my arm on a...
I'm pretty concerned. Had sore throat for seven weeks since operation for breast cancer. When I looked online it said it could have been caused by anaesthetic tube.
So of course I thought it was that complained about it to hospital team - they said it just gargle with salt water water it will cure itself.
As I am a singer I was upset, as if things weren't bad enough with the cancer/ now I'm crippled can't sing or talk, sore throat was so bad I could not talk at all.
As for going...
Hi to anyone reading this. I am new to the site.
I was first diagnosed in 2014 with tonsillitis cancer (HPV related ) having had a non-productive cough for several weeks Attended 30 fractions radiotherapy - horrendous experience as collapsed after 12 sessions and ended up in isolation for 6 weeks.
Experienced CDiff 4 days after getting out of isolation. Eventually managed to get back to work.
2015 slow but insidious degradation of voice and increasing swallowing problems...
I have had my first cystoscopy check this afternoon at 3 months after my operation. I am very pleased to say that all is well. You can see the scar from the operation but it looks healthy and there are no signs of further lesions. Indeed the surgeon who did the operation and also this first check has said I do not need any more checks for 9 months. Yippee!!
There were quite a few people undergoing cystoscopy this afternoon, some for the first time, some old hands. One chap has been fine for 20 years...
