Nickodemus Journey

  • Operations and stoma

    FormerMember
    FormerMember

    I didn’t expect that!  

    Been in hospital nearly 5 weeks following the bowel pain I had turn into a perforated bowel, 4 operations to control, leaving me with a delightful vertical scar of about 6 inches either side of navel. 


    Apparently I hallucinated through the 11 days in ICU.  And bored and dehydrated through the remainder of hospital - many days and nights on saline drips.


    Released yesterday with…

  • Bloating pain

    FormerMember
    FormerMember

    Three weeks past last of 6 rchop - waiting on updating petscan due 16 October 

    In last 3 days significant stomach and bowel bloating and pain plus diorrhea 


    Calming down a bit now - heaven knows what it is??


  • Neuropathy

    FormerMember
    FormerMember

    Last chemo session of 6 next Tuesday 

    Been relatively ok since last session - although maybe more tired for longer this time

    Some mild neuropathy in my toes that I assume I should alert the nurses to?

    Onwards and upwards
  • 5th of 6 rchop

    FormerMember
    FormerMember

    Penultimate rchop tomorrow - I hope - then maybe radiotherapy if advised

    Seems ok so far - apart from fatigue from time to time


    Any tips as to what to expect from radiotherapy much welcomed 


    Nurses at bMI Bath have been outstanding 

  • Resolving 'nicely'

    FormerMember
    FormerMember

    4th Rchop uneventful - good Ned from consultants that the mass is 'resolving nicely' albeit leaving a squashed bit of small bowel that may need resection - but will leave that decision until end of chemo - 2 to go.  Still to decide on radiotherapy as that might hit the bowel too hard 

    So much to decide still!


    Good couple of weeks and got away for a few days in Port Isaac - snookered this week so resting…