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15th septmeber....well another day dawns!! been to see trev today. had a text off him early this morning. said he d had an ok night but quite restless. also said his thriat was hurtin him today.....even tho thats where the cancer is..in his tonsil ...he hasnt been in as much pain since the trachy tube. went down to his and the district nurse was there......his peg site etc seems to be on the mend. he was saying that his tonsil seems to be getting bigger..and to him it looks like its fusing onto his...
well, thought i wud keep up the bloggin as it helps me sooo much!!!
13th september .. out and about today....trev had lotsa things today..tryin to sort out additional housing benefit...he s just got a new house to rent and obviously now on the sick. think we might be gettin organised. district nurse came out today....his peg site been oozing. she showed us how to clean the peg and the trachy site. i was really glad......i think he s done it the best he cud since dishcharge from hospital.....but...
ive added a few things on here before...but its takin me ages to find my way around here!!! was gonna keep a diary of whats been happenin...then decided to do it on here.
the story so far......im 39 and trev is 37....we met in feb...love at first sight!!! been having a brilliant time - gigs, scooter rallies...just enjoying being together. end of may trev felt unwell....flu or tonsillitis we thought. , had just started induction month for new job and had to postpone it. well he was back and forth...
should have had chemo ( ECX ) last week but it was cancelled because my bloods were too low. went testerday to see oncologist as normal who told me i wasnt having any more chemo as it was taking its toll on me. the results of the treatment have been very good and he was amazed at how well i had coped with it. so yesterday was my last treatment 90% of course completed. back today for transfusion and then thats it for 3 months when i go back for consultation. doc says that the cancer will always be...
My mum passed away this afternoon. It was very peaceful in the end. She had wanted to be buried on the same day and wanted a simple ceremony.
I reflect on the last few months and I struggle to believe any of it. I can't imagine my life without my mum as a big part of it.
While we were burying her this evening, I kept thinking about what the Macmillan nurse said to me a few weeks ago when she told me that there was nothing they could do and that my mum was going to die. And I felt very angry...
Well just celebrated my 74th birthday. The house looks like a Florists Shop - even had a beautiful bouquet delivered from my eldest grandson who said gruffly when he phoned this morning `I told them I wanted the best, Nan`. Bless him.
Out to dinner with step-daughter and her family - she laid on a superb meal which, thank goodness, I was able to enjoy - mind you it got me up at 1.30am with slight indigestion - hence writing this blog at 2am. Never mind, it was worth it.
One of my cards from an...
It is exactly 3 months today (or 13 weeks) since the sad loss of my dear Father.
Just sat thinking about him and feeling a little lost. I miss him so much, my heart still aches. These last 13 weeks have been a rollercoaster ride and the rollercoaster is still going, when will it begin to slow down? will it ever stop?
I wanted to write a bit more about how I feel right now, but can't seem to find words to describe it. am I angry, am I sad, am I happy I just don't know...wellI hope I feel better...
i got mum into respite and i also got her another week stay but i am getting help to try and get her in to permenent care me and hubby spoke to the staff at the home this morning and they also agree with us that 24 hour care is what mum need but no i wish i had done it sooner. last night i called my brother to let him know what i was planning to do with mum and now the whole family is against me but i dont care im trying to do whats best for mum. Today my oldest brothers girlfriend started on me...
Tomorrow is Jenni Butlers birthday, and I understand it will be hard on her for its the first without her beloved hubby.
He may not be with you Jenni to celebrate but I know loads of your Mac friends will be with me in wishing you a very
HAPPY BIRTHDAY
on wednesday 15th September, 2010
love Jan xxxxxx
Hi Everyone
Just a quick update on Derek's Progress, he had his total Gastrectomy on May 24th, after a long hard road he is now looking fantastic, he is feeling good, and he is eating vitually anything and the portion sizes are a good size, certainly not tiny portions like he was having just after his op.
He had 3 months chemo before the op and started chemo after op but has had to stop as it was affecting his heart, he had a heart attack 2 years ago and is on a cocktal of drugs so best to...
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