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Well, we are now on week 6 since finding out my partners tumor is Sarcoma and we still have no contact from any one - we have chased and chased, and have heard nothing from them bar - they advise that they are waiting for further histology! Its such...
Was just diagnosed with abdominal sarcoma last Monday have referral to sarcoma team and have mri on Thursday. They have said sarcoma will be removed and that plastic surgeons will probably be involved in surgery. Emotions all over the place feel as tho...
Hi just joined this group, my son has been for MRI for suspected sarcoma in calf, we have been waiting 12 days for results. Friends keep saying we would have heard by now if it was cancer but I am driving myself insane with worrying. My son is autistic...
Hi Everyone I have endometrial sarcoma stage 4B and am currently being treated at Addenbrookes (Cambridge) with Trabectedin. Do any of you have experience of this type of chemo? If so, it would be helpful to hear your experience and whether it has been...
Hello, I am dawn I was diagnosed at 39 after a hysterectomy for a fibroid after an MRI rules out cancer… leiomyosarcoma is the diagnosis stage 1b in may 24 in June, the CT was no evidence of disease by sept it had spread to my lungs after 20 watch and...
Hi, My partner has just been diagnosed with low grade endometrial stroma sarcoma (at least grade 1b). She had a large fibriod which was degrenerating and so had a hysterectomy 6 weeks ago, we have only just been told about them finding this (it took...
Hello all, Can anyone tell me, once the sample has been allocated to a Sarcoma pahologist, how long it takes usually for results in reality? We have been told it can take up to 6 weeks - but have already waited 9, surely that cannot be correct!
I'm so glad I've found this group! I'm after a bit of advice. After speaking to my GP about a lump in my hand I was referred for an ultrasound. I had the ultrasound last Tuesday morning and then got a phone call a few hours later to say that they...
So it's been about 6 months now since my major surgery to remove the sarcoma on the back of my head. Recovery has been hard, but I'm finally at a point where my brain is more bored which outweighs the physical pain I have in my neck and head due to tiredness...
Hi I’m new to this forum and have been directed to this group from one of the Community Champions . I’ve had endometrial cancer 13 years ago and breast cancer in 2023 . Both were early stage and I’ve felt lucky . I had surgery and Radiotherapy which...
