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Hello, I am in a lot of pain to put it mildly. I cannot get comfortable. The pain shoots up and down my leg when I stand up. I have been given paracetamol and 30 mg codeine. I am told that I cannot have a treatment plan until the biopsy results are back...
Hi my name mick I first got cancer in 2016 in bk of leg had radiotherapy and operation all good got all clear cancer came bk 2020 in my lower back again had radiotherapy and six months on chemo cancer had spread this time all over the shop but again got...
Hello, I have just joined this group today, my husband was told only a week ago that he has leiomyosarcoma and it has spread to his lungs and liver, he also has a blood clot in his IVC which is causing his legs to swell very bad, this is the only reason...
Hi all, I was diagnosed with low grade fibromyxoid sarcoma on my neck/back area 6 months ago. As part of the surgical procedure, they removed the tumour, trapezius muscle and levator scapula muscle; and reconstructed the area with a flap using the latissimus...
Hi there, is anyone taking Cabozantinib? If you are how are you finding it? What is it being used for? All information or advice welcome please x
Hello, Does anyone know of any ongoing support groups? Thanks
I am just wondering if anyone else or any parents have had this diagnosis? My daughter is 11 months old but was diagnosed with a soft tissue sarcoma at 9 months. It is behind the left eye so it’s incredibly rare. I am just feeling so lonely as the formal...
Hi everyone After 9 months of tests, I was referred finally to soft tissue specialists who requested a PET CT scan and biopsy with ultrasound. I’ve had a call today from the original hospital who want to see me tomorrow to discuss the Pet scan results...
Hi all, hope everyone is doing ok. I'm currently awaiting an MRI scan for a lump I've had in my index finger for a number of years. I'm completely blindsided to hear that I've been referred to a sarcoma team as nobody has ever mentioned possible cancer...
Please help. 3 weeks ago I noticed a large lump/swelling at the front of my shoulder. I work out at the gym so it was only when I tensed the muscle that I could see the size of it. My ultrasound said there were multiple sacks of fluid in there but they...
