So it's been about 6 months now since my major surgery to remove the sarcoma on the back of my head. Recovery has been hard, but I'm finally at a point where my brain is more bored which outweighs the physical pain I have in my neck and head due to tiredness from being up and about.
Therefore I decided that it was time for maybe doing a phased return back to work . I was quite excited about feeling 'back to normal' and being able to be a productive member of society again... however when I spoke to my husband about it his response has just made me feel a bit rubbish.
He has said I should take more time off and do something more meaningful, discover what I want to do with the rest of my life, find a passion, and should want to better myself. That just going back to my job is disappointing and he'd hoped I would use this time to rethink and do something more, and that why be normal when I could be striving for better than that.
It's made feel a bit like I'm not good enough, and that I'm boring in my choices.
I don't know whether I'm just taking this the wrong way, but I was happy at just being able to still be here and get to live a normal mundane life with my family.
Anyone got any tips on what you did after receiving the clear but continued monitoring diagnosis?
Should there be big life altering change?!
Hi Venhen
Good news that you want to get more active, to start it might be good to have a talk with your employer about how a phased return might be managed.
Where I worked one of the changes I made was taking on a role in their disability matters staff group and the carers network. One big event these networks championed was purple light up where we could make the case that between the disabled and carers we covered a significant fraction of the employees and of course for some potential customers.
I quite often discussed our journey with cancer and found many others who had never felt able to talk about the impact it had on them but opened up and that meant our employer could better support us all - not just changing my life but helping others too.
<<hugs>>
Steve
