Hi everyone!
I haven't posted since 2024 after initial diagnosis, so feel a bit like a 'newby' again.
I feel luckier than some of you, my experience was good, in that, following some blood tests because I felt a bit out of sorts, an ANP at my surgery sent me for a scan. Surgery was relatively quick for what was thought to be kidney cancer, but after a long 2 month wait, we were told was a High Grade Liposarcoma.
No further treatment possible, so exactly 1 year later it was back, this time on my spleen. More surgery, this time at a hospital specialising in this type of cancer, where my spleen was removed, together with part of my stomach, pancreas & diaphragm plus sections from 3 ribs. I was offered & received 6 weeks of radiotherapy to my chest wall.
Now, here we are again, exactly another year on and it is back again! I've come to dread the 'January scan'!
Going to have to make a decision in a couple of weeks when I see my surgeon, as this is the only real option. I'm 70 now (perfectly fit & healthy until all this) & swore last time I couldn't go through more surgery. I'm my husband's Carer too & we have been together since we were at school. I know what he would want me to do, but also know he would never pressure me to have surgery again if I didn't want it.
Anyone out there in a similar position?
Hi Chouette
After the first round of chemo my wife's experiences of surgery were just to try to fix the collapsed lungs that were something of an unfortunate side effect - surgery for the actual cancer was not really an issue since the cancer is scattered throughout her lungs. The doctors did manage to get the lungs to stay inflated and then tried another type of chemotherapy and this managed to make the cancer stable.
I know when Janice was first diagnosed the oncologist said that chemotherapy was not often sucessful with sarcoma so kinda interesting when it was offered.
So glad to hard your husband is supportive, of course he would also be welcome on here and also can ring the helpline if he wants to talk to someone.
<<hugs>>
Steve
