Hi! I want to share my story in the hopes of learning positive stories from others, and potential options.
I was diagnosed with myxoid liposarcoma in May 2023, underwent 25 radiation treatments and a resection. Followed by a serious infection, 3 IND’s and a TFL subcutaneous skin flap surgery. Fast forward to June 2024 and I was diagnosed with metastatic myxoid liposarcoma, a recurrence. I’m undergoing treatment with doxorubicin. Further testing will occur for genomic profiling and most effective treatment options.
However, I want to learn what I can from others who have been through the same or similar. I am in Canada and have learned that in many ways we’re a bit behind in treatment options.
G
